ISSN 1535-7821 Vol. 31 No. 3 2015
As we transition from summer to fall, your CAPHIS Executive Committee is actively pursuing several initiatives to promote our section. Program planning is well underway for the MLA’16 Annual Meeting in Toronto. Working with representatives of several MLA Sections, Judy Carol Stribling, CAPHIS Chair-Elect, has collaborated and submitted special session content proposals to the MLA’16 Program Planning Committee for review. We look forward to learning if one or more of these special sessions will be selected.
As MLA continues the migration to the new Socious platform, CAPHIS will complete this transition in December. To be more supportive of members throughout the year, MLA has asked each section to identify core projects that will promote interaction among section members. From discussions, comments, and feedback expressed during MLA’15 in Austin, TX the Executive Committee submitted two projects to MLA. The first project is the development of documentation that can be sent to our members’ institutional stakeholders detailing the relevance and importance of the services provided by their medical librarians. The second project relates to creating an archive of the history of CAPHIS. This will enable each of us to gain greater insight into how our predecessors recognized and addressed the importance of providing access to reliable health information resources as the primary pathway for engaging patients and consumers in their care. Through each of these projects, we can ensure that CAPHIS continues supporting the efforts of our members.
There are a multitude of opportunities for all CAPHIS members to participate! For more information, please email me.
Mary Katherine Haver, 2015-2016 Chair
Consumer and Patient Health Information Section
Kay Hogan Smith, Professor/Community Services Librarian, has announced her intention to step down as director of Health InfoNet of Alabama effective January 1, 2016. Health InfoNet of Alabama is a free, award-winning consumer health information service of the state’s medical and public libraries. Ms. Smith has directed the project since its beginning in 1999. Under her leadership Health InfoNet grew from a local collaboration between UAB Lister Hill Library and the Jefferson County public libraries to a statewide effort, involving all 200+ public libraries in the state, the University of South Alabama Biomedical Library as well Lister Hill Library, and numerous supporting organizations such as the Alabama Public Library Service, the Alabama Health Libraries Association, and the State Health Planning and Development Agency.
In addition to providing access to reliable, current health information relevant to users’ needs and assistance via the public libraries or the web site (www.healthinfonet.org), the Health InfoNet project promotes training of public libraries’ staff in medical reference services and collection development consultation. The web site also includes a searchable database of health services throughout the state. Ms. Smith will continue to maintain the web site and database of services.
A search is currently underway to identify a new project leader.
Updates from Medlineplus.gov
Medlineplus.gov had a busy year. At the time of this writing, it looks like MedlinePlus is on track for having 1 billion page views for the second straight year. Over half of this traffic comes from phones and tablets, so we’re making several changes to better accommodate those users. For one, we redesigned medlineplus.gov so that the layout would automatically adjust to a screen of any size. We have also begun consolidating and reducing the number of subcategories on the health topic pages. Concomitant with these global changes, we are also shifting our regular topic review process to look more deliberately for rational ways to split out new topics and to weed the link collection based on usage. All of these projects are part of a general effort to present better organized content and an improved experience for the user, no matter what kind of device they use to visit us.
Meanwhile, usage of MedlinePlus Connect has more than tripled this year. As more and more health care providers are moving to electronic health records (EHRs), they are also embracing tools such as MedlinePlus Connect that facilitate links from the EHR to the reliable and authoritative consumer health information on medlineplus.gov. October 1, 2015 is also the date that most U.S. providers are required to switch from ICD-9-CM codes to ICD-10-CM codes. MedlinePlus Connect has been supporting ICD-10-CM for over a year now and we will continue that support.
As medlineplus.gov enters its 18th year, we continue to adapt to the technology and user behavior of the times. Whether your patrons come to us through an EHR, mobile phone, desktop, or smart TV, it is our pleasure to help them find free, non-commercial consumer health information from respected sources.
Consumer Health Comics: Captain Fit
With the rise in childhood obesity, the librarians at LSU Health Shreveport Health Sciences Library sought a creative approach to help pediatricians teach good health principles to their patients. Enter The Amazing Captain Fit, a comic book created by librarians, Talicia Tarver and Deidra Woodson, and LSU-S art student, Nick Fechter.
Funded through an NN/LM Health Information Literacy Award, the comic follows the adventures of a young boy who aspires to be just like his favorite superhero, Captain Fit. However, the boy must first complete a series of tasks to make sure he is himself healthy and ready to help Captain Fit fight childhood obesity. The Library worked with Dr. John Vanchiere in the LSU Department of Pediatrics on the content for this project before releasing it to the public in April of 2015.
The comic was highly publicized through local press and libraries, as well as at the first annual Louisiana Comic Con on February 21, 2015. Five hundred copies of the comic book were printed and distributed throughout the community to reach young readers in Caddo and Bossier Parish. An online version is also available through the Library’s healthelinks for kids webpage.
HealthStreet at the Univeristy of Florida
The University of Florida George A. Smathers Libraries has awarded a Strategic Opportunities Grant to Maggie Ansell, the consumer health librarian at the Health Science Center Libraries. The Strategic Opportunities Grant program offers funding for creative and innovative programs and services that enhance and support the mission and strategic directions of the Smathers Libraries.
The $4,000 award will fund a pilot consumer health services program at HealthStreet, a community engagement program established by University of Florida’s Department of Epidemiology. HealthStreet reaches out to members of the community with limited access to healthcare, assesses their health needs, connects them to local social and healthcare services, and enrolls them in relevant UF clinical studies. The pilot project, Educating UF Research Participants: Consumer Health Information Services at HealthStreet, is using focus group and quantitative data on the consumer health information needs of the staff and users of HealthStreet to create a customized consumer health web resource workshop that will be offered to all HealthStreet staff and volunteers, teaching about trustworthy online consumer health resources, as well as methods for evaluating the quality of consumer health websites. In addition, the needs assessment will be used to purchase a collection of consumer health monographs on topics important to the users of HealthStreet. This print collection, along with the online resources demonstrated in the workshop, will become part of the HealthStreet’s collection of resources, with staff and volunteers referring users to books and online resources alongside their referrals to healthcare providers.
The Health Science Center Libraries will evaluate the success of this program model over the course of the next year and use it to inform further consumer health service design.
Submitted by Maggie Ansell, University of Florida, Gainesville, FL.
Creating a Virtual Patient Education Library
The Spencer S. Eccles Health Sciences Library has partnered with University of Utah Health Care hospital and clinics to collect, control, and centralize all in-house patient education documents. This will not only meet hospital accreditation requirements, it will increase access to relevant, high quality patient education material. We will accomplish this by collecting and organizing all patient education documents in an online Pulse library available to all users.
The Patient Education Document (PED) Team includes:
The hospital Value Management System Director, Accreditation Specialist, and IT Support consult with this team. We are working on the huge task of collecting patient education materials from all patient care areas in the organization.
The material is submitted to an online library on the organization’s intranet. The documents then progress through a Lean workflow for evaluation. Each one is reviewed for currency, correct logos and footers, and readability.
The documents are also cataloged with MeSH (medical subject heading) terms. Cataloging the materials enable patient care staff to easily find the item and print what they need, when they need it to ensure the most current content is being distributed to patients. Once documents have made their way through this process, they are published in the Patient Education library for use. Document owners will receive electronic notifications when the material is up for review in order to keep the content up to date.
The PED Team has made significant progress towards completing this important task. If you would like more information, please contact Heidi Greenberg at 801-587-9246.
Alpha Docs describes one doctor’s journey in becoming a top cardiologist at Johns Hopkins. From the book’s beginning, Dr. Daniel Muñoz captivates readers with his life-changing story that decided his future. Throughout the book, Dr. Muñoz share very detailed patient stories and personal experiences, but his writing is never boring. He thoroughly explains his thought process and lets readers inside his head when working with patients. With each patient story, he paints a vivid picture of what is happening and explains each decision he made regarding that patient. There is also emotion behind the writing, especially as Dr. Muñoz learns how to communicate effectively and compassionately with patients. Dr. Muñoz displays critical thinking and quite often questions himself while learning his specialty. He wants to know whether he is doing the right thing or if he is causing the patient harm.
During the course of the book, we explore his cardiology fellowship experience, including the various rotations, and learn about the life of a cardiologist. Readers will want to know more about his life and will enjoy following his journey through each rotation. Although this book is for advanced readers, Dr. Muñoz does a great job explaining certain medical terms and procedures. Alpha Docs thoroughly allows readers to understand how cardiologists are made. Highly recommended.
Reviewed by: Kelsey Leonard, MSIS, Preston Medical Library, Knoxville, TN
It is hard to imagine that a non-fiction book about heart health would be a page-turner, but that is exactly what happens when reading Forester’s work. “The Heart Healers” is in part narrative, historical and biographical. The writing style is very accessible, but there are some clinical explanations that might require a second reading for the uninitiated. This is a record of the 20th century path from the sense that there was nothing doctors’ could do for heart problems, to the wonder and success of heart health care today.
Forrester, an Emeritus Professor and former Chief of the Division of Cardiology at Cedars-Sinai, is a prolific author of clinical research. However, in this volume, he is writing for the interested lay reader. He keeps our attention through the historical and technical detail by peppering the chapters with real-life stories from his own experiences as a cardiologist. He also relates the stories of the doctors and researchers upon whom his experiences rest.
The Heart Healers is both a great, and important, read. At this point in human history, with cardiovascular disease as the leading cause of death in the United States, education about heart care needs to come from many sources. In the chapter that addresses prevention of coronary arterial disease, Forrester lists the changes that need to be made – and there is no surprise - watching one’s diet, exercising, smoking cessation, controlling high blood pressure and taking appropriate medications when prescribed. However, as often as this regimen is widely and aptly recommended, the author acknowledges that the exact combination of all of these is not clear at this time and continued research is warranted.
Recommended for all libraries in the heart health area.
Reviewed by: Jackie Davis, Sharp HealthCare, San Diego, CA
Rao, Vani and Sandeep Vaishnavi. The Traumatized Brain: A Family Guide to Understanding Mood, Memory, and Behavior after Brain Injury. Johns Hopkins University Press, 2015, 188 p, index. ISBN 978-1-4214-1795-0, $18.95.
Dr.Vani Rao, Director of the Brain Injury Clinic at Johns Hopkins University and Dr. Sandeep Vaishnavi, Director of the Neuropsychiatry Clinic at Carolina Partners, wrote a unique book about traumatic brain injury geared toward families of survivors. The first section focuses on normal brain function, which the authors explain, is necessary to understand brain dysfunction. Each chapter begins with a realistic case study of a patient with a different injury and survivor profile, focusing on aftereffects like depression, sleep disturbances and memory. Chapters cover symptoms, treatment, and tips (which are separately listed for the patient and family members). While the book mentions emergency care and rehabilitation, it focuses on long term medical and psychiatric symptoms of TBI. Its strength is in explaining which types of injuries can lead to certain effects.
The language of brain injury is difficult (hypothalmus, transcranial magnetic stimulation, etc.), but the authors define terms well within the text and in a glossary. Brand and generic names are listed for all medications. Acronyms for phrases like cognitive behavioral therapy are introduced in multiple chapters. The book also provides technical illustrations, a resource list that includes military based resources, and suggested reading lists for general and professional reading. The last chapter covers emerging therapies, like neuromodulation.
The authors stress that while symptoms of TBI can be serious and long-lasting, many resolve with time and/or therapy. For educated readers with a loved one with TBI, this book will provide an overview of what to expect, practical advice, and reassurance.
Reviewed by: Cara Marcus, Brigham and Women’s Faulkner Hospital, Boston, MA
Consumer Connections (ISSN 1535-7821) is the newsletter of the Consumer and Patient Information Section of the Medical Library Association. It is published on the CAPHIS website quarterly. Notification of publication is sent via the CAPHIS listserv. CAPHIS is the largest section of the Medical Library Association.
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