ISSN 1535-7821 Vol. 30 No. 3 2014
Greetings from your new CAPHIS Chair for 2014-2015! It was great seeing so many old CAPHIS friends and meeting new ones at the various CAPHIS events at MLA 2014 in Chicago in May! This newsletter issue, under the excellent editorial guidance of Darell Schmick, features highlights from that meeting, including photos and reminiscences shared at the 30th anniversary celebration during the CAPHIS Business Meeting on May 19th. Longtime CAPHIS members and former leaders of the section spoke about the early days of CAPHIS in the 1980’s when consumer health information services were THE exciting new thing in libraries. Be sure to check out this newsletter issue if you missed that program!
Another great program that CAPHIS helped sponsor was the Patient Engagement Symposium, coordinated by past CAPHIS Chair, Meredith Solomon, and CAPHIS Nominee to the MLA Nominating Committee, Terri Ottosen. It was a terrific learning opportunity – if you missed it, you may check out the presentations and notes posted on the LibGuide created for this symposium at http://www.mla2014symposium.libguides.com/patientengagement/.
Our CAPHIS Program Chair (Chair-Elect), Mary-Kate Haver, is already hard at work planning CAPHIS programming for MLA 2015 (Librarians Without Limits) in Austin, Texas! Be on the lookout for updates from her as plans progress and make your own plans to join us in Austin May 15-20, 2015!
As I posted in the CAPHIS listserve recently, we are in need of volunteers for the various CAPHIS standing committees and ad hoc task forces (see http://caphis.mlanet.org/organization/committees.html for a list of committees). This is a great way for you to learn more about the work of the section, while earning AHIP points for certification! In particular, there is a new task force created at the CAPHIS Board Meeting on May 18 to look into the possibility of reviving the CAPHIS online directory of consumer health information services around the country. If you are interested in volunteering for this task force or another committee, please contact me at firstname.lastname@example.org or (205) 934-2208.
One longtime CAPHIS leader, Andrea Kenyon, has retired. Meredith Solomon will take over moderating the CAPHIS listserve for Andrea. We thank Andrea for her many years of service in this capacity, and add our best wishes for her retirement!
Finally, I would like to express appreciation to our Immediate Past Chair, Christine Marton, on behalf of myself and CAPHIS. She certainly helped me get through my program planning jitters and kept us all on track as we dealt with Section business throughout the past year. Christine will continue to serve CAPHIS this year in her role as Section Council Representative and Nominating Committee Chair. She’s also heading up an effort to design a new CAPHIS logo! Thank you again Christine!
Have a great summer everybody!
CAPHIS convened at MLA14 to conduct business as usual--plus a little more. What awaited members was a beautiful cake celebrating CAPHIS’ 30th birthday. Included in the festivities were also founding members of CAPHIS, who each had something to share about our group.
Luckily, photos were taken of this special event!
Hats off to a great event. To 30 more years!
Photos courtesy of Christine Marton and Kay Hogan Smith.
Hi, I do recall hanging out in hotel rooms with librarians who were trying to get the section started. We started in 1980 in Washington, DC, and continued in Montreal in 1981! There was some resistance from MLA and individual librarians that this was not where librarians should venture!
We debated whether other sections such as the Hospital Library could cover the subject; they had a Patient Education part. But we felt that because Medical School, Cancer, Nursing and even public librarians were concerned about Consumer Health, we shouldn’t affiliate with just one section; it would limit our effectiveness & appeal. We felt like revolutionaries! Of course, there were the usual snafus; there was a moratorium on new sections just when we were ready to apply to become a section!
Barbara Pace was the first Chair of the provisional section in 1984. I was the first Section Council Representative for 1984-87. Dues were $2.00! Michael Kronenfeld and I wrote an article for the MLA News on Becoming a Section!
I was Chair 1992-93. I am proud to be around when CAPHIS moved the MLA Board to accept, “The Librarian's Role in the Provision of Consumer Health Information and Patient Education”. The task force members were: Joanne Marshall, Margaret Bandy, Kathy Lindner, Lisa McCormick, and Janet Schneider.
We all know it is a team effort. Everyone’s efforts help! I am glad to see that the Section has survived and is as vibrant as it is!
The Internet is an established information source for meeting health information needs in North America. Early research on health information seeking online examined demographic differences in Internet use based on gender, age, locality, education, and income, primarily by using nation-wide telephone and Web surveys that achieved large sample sizes, allowing for the use of inferential statistics to determine which factors influence this behaviour. More recently, this research area has broadened to reflect the diversity of American and Canadian populations, including the lesbian, gay, bisexual, transsexual, and queer and questioning (LGBTQQ) community as it asserts its rights and fights against discrimination. With the World Pride Week celebration in Toronto, Canada in June, 2014, an examination of a recently published American survey study on LGBQ and non-LGBQ youth seeking sexual health information online published is timely. On a personal note, my background in consumer health information started in the mid-1980s when I joined the volunteer staff of the University of Toronto Sexual Education Centre during my undergraduate studies, first as a peer counsellor, and eventually, as its librarian and administrator. Thus, the topic of sexual health information is of long-standing interest.
“Accessing sexual health information online: use, motivations and consequences for youth with different sexual orientations” was published in the journal Health Education Research. It reports on findings from a large-scale survey study of American youth from ages 13 to 18 who use the Internet. The Teen Health and Technology study was conducted from August 2010 to January 2011 and had 5542 respondents. Because the sample size had an insufficient number of transgendered respondents, this category was not used in the classification of study participants by sexual orientation.
Two multinomial logistic regression models were conducted. The first estimated the conditional odds of why youth sought out sexual health information online: (i) privacy-related reasons, or (ii) having no one to ask versus (iii) curious/other (reference category). The second estimated the conditional odds of doing something with the information found online given the specific reasons for searching for sexual health information: (i) had conversation, or (ii) took action versus (iii) doing nothing/something else (reference category).
Overall, bisexual youth were most likely to search for any kind of health information online (81%). 78% of gay/lesbian/queer youth searched for sexual health information online, compared to 65% of bisexual youth, 40% of youth in the category, questioning/not sure/other, and 19% of heterosexual youth. Information about sexuality or sexual attraction was searched online most frequently by gay/lesbian/queer youth (72%) and 54% of bisexual youth. Information about HIV/AIDS or condoms and birth control methods was infrequently searched. Fitness and weight issues and mental health issues were popular non-sexual health topics; the latter was searched at higher rates by non-heterosexual youth.
LGBQ youth were twice as likely as heterosexual youth to looking for sexual health information online for privacy-related reasons and also because they had no one offline to ask. Younger teens and rural teens were also more likely to seek sexual health information online because they had no one offline to ask. Somewhat less than half of youth, irrespective of sexual orientation, did nothing with the information obtained online, while approximately one-third or less had a conversation with someone about it, and approximately one-third or less took some action. However, those who sought health information online for privacy-related reasons or because they had no one offline to ask were more likely to take some action based on the information they retrieved.
The Internet serves is a valuable source of sexual health information for sexual minority youth who often lack alternatives. Consumer health information websites should ensure that they provide accurate and unbiased information about sexual health for the LGBTQQ community.
Mitchell, K. J., Ybarra, M. L., Korchmaros, J. D., & Kosciw, J. G. (2014). Accessing sexual health information online: Use, motivations and consequences for youth with different sexual orientations. Health Education Research, 29(1), 147-157.
As a children’s librarian by training this book entitled Animal Fun for Everyone really makes the grade as it meets all the criteria for an age appropriate book for small children. First, it is a board book meaning that each page is constructed of thick cardboard for ease of manipulation and holding by little hands. Board books are meant for toddlers with the characteristic rounded edges so they cannot poke themselves or others in the eye. Each page is created from full color photographs depicting children with down syndrome each with a different animal. The black, bolded text on each page is highlighted in a bright yellow box. With few words the book describes an action that each child is doing with their animal, such as “feeding a chicken” or “hugging a goat”. Children with down syndrome will enjoy looking at photographs of children who look like them engaging in activities they would probably enjoy.
Marjorie Pitzer is an Early Intervention Specialist who works with infants and toddlers with developmental delays. She teaches undergraduate and graduate courses at Miami University in Oxford, Ohio, and is a statewide conference presenter. Photography has been her life-long passion. She is the author of several books whose pictures depict children with down syndrome.
I would add this to my collection under the heading “Disabilities” and offer to share the title with any kind of family, ones with special needs children and ones without special needs children. We can all benefit from normalizing a disability.
Reviewed by Judy Griggs, Akron Children’s Hospital, Akron, Ohio
Brantley, Jeffrey MD. Calming Your Angry Mind: How Mindfulness and Compassion Can Free Your From Anger and Bring Peace to Your Life. New Harbinger Publications, Inc., 2014. 259p. ISBN 978-1-60882-926-2. $12.99.
Dr. Brantley is an associate consultant in the psychiatry department as well as the founder and director of the Mindfulness Based Stress Reduction program at Duke University. He has had a commitment to meditation for over 30 years. He is the co-author of the well-received “Five Good Minutes” series. Additionally, Dr. Brantley (along with Jon Kabat Zinn) previously wrote, “Calming Your Anxious Mind,” using the practice of mindfulness (actively choosing to be present to each moment) to lessen fears and anxieties. In this new publication he shifts his focus to anger and how the practice of meditation can “better manage anger and other difficult emotions and to enjoy a happier, kinder life” (p.13).
Brantley assumes that the reader is motivated to make some life changes though he does identify research that points to the great benefits of a mindfulness practice that might encourage someone to begin this practice. If in fact the motivated reader is looking for a “how to,” this book is gentle, inviting and non-judgmental.
The author dissects the emotion of anger, and the biological, emotional and social costs for remaining in a state of anger. He describes how neuroplasticity allows for changes in the brain and that consistent effort to be mindful will actually alter and strengthen the connections to support a calmer response to life’s challenges.
However, Dr. Brantley points out that the practice of mindfulness is not only the awareness of each moment, but also a generator of compassion. As the reader begins to incorporate the suggested 15 meditations, a sense of kindness and empathy – for self and others - will be a significant gift of the practice.
This work is highly recommended for all libraries.
Reviewed by Jackie Davis, Sharp HealthCare, San Diego, CA
Shiminski-Maher, Tania, Catherine Woodman, and Nancy Keene. Childhood Brain & Spinal Cord Tumors: A Guide for Families, Friends, and Caregivers, 2nd ed. Sept., 2014. 560p. Childhood Cancer Guides. Pap. $29.95. ISBN: 9781941089002.
First published in 2002, this comprehensive guide to pediatric brain and spinal cord tumors offers a wealth of useful information for patients and their families. The authors are a nurse practitioner who works with pediatric tumor patients, a psychiatrist with a child who is a brain tumor survivor, and a medical writer who is the parent of a childhood leukemia survivor. They provide the latest information about the diagnosis and treatment of brain and spinal cord tumors in children. They begin with signs and symptoms and the relevant anatomy and physiology. They discuss the various types of tumors and treatment options, including information about clinical trials. They also discuss telling the child, family members, and friends and the new electronic options for keeping people informed about the patient. They cover working with health care professionals, hospitalization, chemotherapy, radiation therapy, and surgery. They provide important information about the emotional aspects of having a sick child in the family, school, healthy siblings, and behavior and communication issues in sick children and their families. Nutrition, medical and financial record-keeping, sources of support, and death and bereavement are covered as well. Quotations from family members provide a dose of reality. This valuable resource belongs in consumer health and public libraries. It will help patients and their families cope with serious illness.
Reviewed by: Barbara M. Bibel, Oakland Public Library, Oakland, CA.
If one “Googles” Parental Alienation Syndrome (PAL), the reader will find many definitions and explanations for this topic. Baker has written extensively on PAL and has two additional books that will be published in 2014 on the subject. Baker and Fine have collaborated in writing two additional books of tools that alienated parents can take before the damage is done in their relationship with their children – and for parents who have already lost their children in a rancorous child custody battle. These manuals are not simply explanations, but practical actions for the alienated parent to use in order to bolster their endangered relationship with their children. ”Fidler and Bala (2010) report both an increasing incidence and increased judicial findings of parental alienation; they report estimates of parental alienation in 11-15% of divorces involving children” (as cited by Kruk, Psychology Today, 2013). The authors site numerous references that address the long-term consequences due to the negativity of PAL. This book includes workbook exercises, as well as positive strategies to use in the face of the influence toxic exes use in these sad family scenarios.
The authors compare a toxic co-parent as having similarities to cult leaders. They draw the child in such a way as to erase the other parent from the mental and emotional life of the youngster. Rather than seeing the child as a collaborator in this divisive behavior, the authors suggest the cultivation of compassion. The children are victims of these actions and are hurting from the injurious conflict, and will continue to hurt long into adulthood based on the follow-up research.
Though I recommend this book for libraries, I would also advise the purchase of Baker’s other books as well to have a larger picture of all the family members’ experiences and potential for salvaging damaged relationships in the long-term.
Reviewed by: Jackie Davis, Sharp HealthCare, San Diego, CA
Back pain is a common complaint of U.S. adults. In fact, it is almost an inevitable experience of aging regardless of circumstance in this country. However, it is not necessarily so among adults in other parts of the world, which is one of the many mysteries of this frequently disabling condition that Dr. Stern, a neurosurgeon at Weill Cornell Medical College, seeks to shed light on. Stern also seeks to empower back pain patients to be informed self-advocates in order to avoid misdiagnosis and ineffective treatment, which he frankly admits is a widespread problem in the field. To that end the book is arranged in a series of steps, thoroughly covering the physiology of back pain “generators,” the limitations of health care technology and health care system obstacles (e.g., time, insurance coverage, etc.) in supporting correct diagnosis and treatment for back pain, working with health care professionals to overcome these issues, addressing possible psychological contributors to back pain, integrative therapies (including chiropractic care) and prevention. The author’s honesty, expertise and compassion for back pain patients are evident, and the motivated reader will likely acquire substantial information from the book with which to secure proper treatment and eventual relief from symptoms. The reading level required is quite high, and this is the biggest criticism of the work. However, Ending Back Pain should find a welcome audience in any consumer health collection regardless.
Reviewed by: Kay Hogan Smith, UAB Lister Hill Library of the Health Sciences, Birmingham, AL
Caroline Lee has written a manual that provides “sequential steps in programming to meet more than 100 Individualized Education Program/Individual Education Plan (IEP) or equivalent goals for listening, receptive and expressive language, and whole word reading for students with developmental challenges.” Speech therapists and educators are the target audience, but the activities are presented with clear instructions and explanations making the manual a useful tool for parents who have no formal training in language therapy. Techniques for teaching language skills are outlined in Part 1 and the actual goals to be achieved when following the step-by-step instructions are detailed in Part 2 of the manual. The comprehensive tracking record listing prerequisites for each goal as well as a glossary, materials list and references used are included in the Appendices section. The author’s attention to detail and thorough research is evident making the manual a useful tool for teaching students with significant developmental challenges including those students on the autism spectrum. Recommended for academic libraries, public libraries and health resource centers.
Cynthia L. Butcher, MLS. MeadWestvaco Family Resource Center, Dayton Children’s Hospital. Dayton , Ohio
Stretch More, a rubber-band boy, isn’t always as flexible as his name implies. As with other children with OCD, ADHD, Tourette syndrome or a similar disorder, he is often inflexible and doesn’t know how to deal with change or problems of daily living. Readers follow Stretch through three “Pick-Your-Path” stories. In each story there are multiple decision points; readers decide what path the story will take and are instructed to turn to a certain page to continue reading. Each path guides readers to seek out information, collaborate with others, and come up with an acceptable solution. While the book is intended for children ages 8-13, and can be read alone, it is also a tool for parents to read and use with their children. Helpful tips are provided for parents in footnotes, explaining the behaviors and actions of story characters and how to apply this technique.
Based on Green’s Collaborative and Proactive Solutions approach to problem solving, this is the first book on this topic written for kids. Parents and teachers who have been unsuccessful with traditional parenting techniques will appreciate this new way to understand and work with difficult children.
Reviewed by: Nancy O’Brien, UnityPoint Health - Des Moines, Des Moines, IA
Nina Teicholz’s biography describes the author as an “investigative reporter”. She has written for The New Yorker, The Economist, The New York Times, and The Washington Post. In the opening of the book, she states that she changed her own eating habits in 2000 when she was writing a column for a small New York City paper and didn’t have a meal budget. She ate with wild abandonment whatever the chef sent to her. As she noticed changes with her own weight dropping instead of increasing, she became curious about a higher fat diet and one with more red meat.
The book is easy to read and appears to have supporting evidence for this way of eating. At the same time, it is very different from what scientific experts have been recommending. The author cites many reports and people with research starting in the early 1900’s to present. She also alludes to the fact that many of the dietary woes in the world today are caused by the food industry itself.
In a consumer health library, perhaps caution should be used when deciding if this book belongs in a collection. More research and decisions are needed before an endorsement of this diet change can be made.
Monique McCollum, RN, MPH, Patient Education Coordinator,
University Of Colorado Hospital, Aurora, Colorado
Bellebuono, Holly. The Essential Herbal for Radiant Health: How to Transform Easy-to-Find Herbs into Healing Remedies for the Whole Family. Roost Books, 2012. 336 pp. ISBN: 9781590309476 (print) 9780834827714 (e-book) . $19.95.
There are many books out there on herbs and their uses, but it's not always easy to find a recent and reputable one that focuses on medicinal aspects of herbalism. These two books each make a useful contribution in that direction.
Well-known herbalist and author Gladstar focuses on "33 healing herbs to know, grow and use". After an introduction, she gives the beginner a welcoming and straightforward mini-course on how to actually make the remedies from the herbs (the process for producing salves, oils, etc.). She then has sections on both nine familiar herbs (basil, ginger, thyme, and the like) and then features 24 less familiar herbs. The recipes are not daunting and the photos are attractive, and there are notes on the historical uses of the plants and the expected medical benefits. The limitation to 33 herbs is a plus and a minus--the information feels more accessible, but there isn't the broad sweep of a reference work.
Bellebuono's book has information on a wide range of herbs. Rather than in-depth discussion of each, its main focus is offering recipes: for life stages, aspects of healthy living, and enjoyment. It has a more folksy appeal, referring to sniffles and tummy health, and reads much like "The Moosewood Cookbook". Recommended by Library Journal as "a balanced, basic introduction to creating herbal medicines; recommended", it has its place in showing the myriad ways herbs can improve our daily life. However, some online reviewers noted that Bellebuono's newer book The Authentic Herbal Healer is more "textbook-like" and comprehensive, so it might be a better choice for libraries.
For the user of each of these books, an important concern should be that of medication interactions, but in these works this (and Western medicine in general) is very little discussed. Gladstar notes that her book is on "family herbalism" and is not meant to replace medical treatment; Bellebuono goes so far as to have a section on herbs not to use in pregnancy. But since there can be quite significant interactions between herbal and allopathic medications, these books should be checked out to users with that caution. While each is a helpful, user-friendly basic text for those who want to begin exploration of the subject, libraries might want to also have available a more rigorous work, or a well-regarded database such as Natural Standard.
Reviewed by: Ann Glusker, MLIS, Reference Librarian, Business/Science/Technology Department, The Seattle Public Library, Seattle, WA.
Chock full of tips and tricks for making your relationship as strong, stable, and full of love as possible, The Happy Couple covers a variety of relationship aspects that alternatively delight and vex most of us fortunate enough to have a loving partner in our lives. The book is not intended to be read cover to cover, so a good starting point is skimming the table of contents and looking for a problem happening in your relationship right now. Flip to that section and Goldsmith provides commentary on the importance of the topic, the benefits to getting back on course if you have gone a bit astray, and an exercise or checklist for how to make your next move. The language is action-oriented, and Goldsmith has lots of ideas for easy, quick ways to make your relationship even better.
It’s unsurprising to find ‘communication’ as the first topic. Many couples celebrating golden anniversaries will tell you it’s the key to the ongoing health of their relationship. Making “happiness a habit” is another recurring theme. More than anything, Goldsmith encourages thoughtfully treating your partner with love and kindness, and looking for ways to offer or ask for support when needed. Some chapters are about keeping up with and reinforcing good habits when things are good, and other sections cover how to be more thoughtful and things are not so good. From humor to problem solving to celebration, this is a comprehensive and easy to read little book that you can dip into again and again to get ideas for improving your relationship and becoming a better partner.
Dr. Barton Goldsmith is an award-wining psychotherapist as well as a syndicated columnist since 2002, and a popular radio host. He has written three books in a series on Emotional Fitness covering relationship and work topics, and 100 Ways to Boost Your Self-confidence – Believe in Yourself and Others Will Too. The Happy Couple is his 5th book.
Lara Killian, MA, MLIS, Capital Health, Halifax NS
Consumer Connections (ISSN 1535-7821) is the newsletter of the Consumer and Patient Information Section of the Medical Library Association. It is published on the CAPHIS website quarterly. Notification of publication is sent via the CAPHIS listserv. CAPHIS is the largest section of the Medical Library Association.
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