ISSN 1535-7821 Vol. 29 No. 3 2013
As summer fades and autumn leaves fall, planning for the Annual Meeting in 2014 in Chicago is well underway. Chair-Elect Kay Hogan Smith has done an admirable job of organizing CAPHIS programming. A comprehensive list of the 2014 section programs is provided on the MLA website at:http://mlanet.org/am/am2014/sect_prog/index.html. All CAPHIS members are encouraged to submit an abstract for a contributed paper or poster for the CAPHIS sponsored program and CAPHIS co-sponsored programs. The deadline for submissions is November 1, 2013.
Also of importance is the recent announcement concerning the National Library of Medicine (NLM)’s Associate Fellowship program. Applications for its one-year training program for recent MLS graduates and librarians early in their career are now being accepted. Submissions are made online at the NLM website: www.nlm.nih.gov/about/training/associate/. The deadline for submissions is February 4, 2014. Questions should be addressed to Kathel Dunn, Associate Fellowship Program Coordinator at 301-435.4083 or firstname.lastname@example.org.
An interesting piece of news in the field of consumer health information is the launch of patientACCESS. This collaboration between six major publishers of health sciences journals purportedly will provide patients and their caregivers with low-cost access to research articles. The publishers involved in this endeavor are the American Association for Cancer Research (AACR), American Society of Clinical Oncology (ASCO), Elsevier, SAGE, Wolters Kluwer Health, and Wiley & Sons. For details, please visit http://olabout.wiley.com/WileyCDA/Section/id-818473.html?dmmsmid=0&dmmspid=0&dmmsuid=0.
For those working with consumer health collections in children’s hospitals, the recent announcement of Dr. Michael Apkon’s appointment as president and CEO of the Hospital for Sick Children (SickKids) in Toronto, Canada may be of some interest. Dr. Apkon is currently the senior vice president of medical affairs and chief medical officer at the Children’s Hospital of Philadelphia, the top ranked children’s hospital in the United States in 2013, according to US News & World Report’s Best Children's Hospitals 2013-14 Honor Roll http://health.usnews.com/health-news/best-childrens-hospitals/articles/ 2013/06/11/ best-childrens-hospitals-2013-14-overview-of-the-rankings-and-honor-roll. Both top-ranked children’s hospitals, The Children’s Hospital of Philadelphia, in the United States, http://www.chop.edu/, and the Hospital for Sick Children in Canada, http://www.sickkids.ca/, have well known and extensively utilized consumer health information collections; The Connelly Resource Center for Families at CHOP, http://www.chop.edu/visitors/family-support-and-resources/connelly-center.html, and The Family Centre, at SickKids http://www.sickkids.ca/ProgramsandServices/Family-Centre/index.html, respectively. They also offer well-developed online portal sites on children’s health designed for children, Kids Health Galaxy at CHOP, http://www.chop.edu/kidshealthgalaxy/index.html, and aboutkidshealth at SickKids, http://www.aboutkidshealth.ca/En/Pages/default.aspx. Perhaps there are untapped opportunities for collaboration in consumer and patient health information between American and Canadian CHI librarians at these two prestigious healthcare institutions in the future....
The MLA 2014 program planners have posted the paper and poster abstract submission instructions at http://www.mlanet.org/am/am2014/sect_prog/index.html. The deadline for submission is November 1. Please consider submitting your abstract proposals for the CAPHIS section programming!
CAPHIS is the lead sponsor or co-sponsoring section for the following contributed papers programs:
Looking forward to seeing you at MLA 2014 in Chicago!
Submitted by: Kay H. Smith, CAPHIS Chair-Elect
This latest entry in the What Nurses Know series focuses on headaches of all varieties and severities. Written by an experienced RN and health educator, Ms. Cohan also has years of experience with headaches herself. She provides personal experiences of her own as well as vignettes of headache sufferers throughout the book, providing real life examples of the challenges and successes in coping with headaches. This book is well-organized, thoroughly covering all types of headaches from the common tension type to migraines to those indicating life threatening conditions such as aneurysm. Each section dealing with a specific type of headache includes information on prevention as well as coping methods and treatments of all kinds, including complementary and alternative headache treatments. There are chapters specific to unique populations, such as headaches in children and women. Sources of information for each chapter are scrupulously documented in the bibliography.
The primary complaint about What Nurses Know…Headaches is that its reading level is high for readers. For example, a sentence in Chapter 3 reads, “Episodic headaches, sometimes accompanies by temporary neurological effects, may be triggered by the immune system’s inflammatory reaction to consuming gluten [p. 39].” Certainly, addressing a complicated medical subject such as headaches can be difficult to put in plain language, but some readers may be disheartened by the effort required to get through this dense writing. Fortunately, there is an excellent glossary at the end of the book, as well as a useful “headache diary” appendix and an index.
In summary, What Nurses Know…Headaches is a well-researched, comprehensive and up to date addition for headache collections despite its high reading level.
Reviewed by: Kay Hogan Smith, MLS, MPH, CHES; UAB Lister Hill Library of the Health Sciences, Birmingham, AL
Crissey, Pat. Body Talk: Teaching Students with Disabilities about Body Language. Woodbine Press, 2013. ISBN 978-0-60613-175-6 217pp. $29.95.
Written by a special education teacher with twenty years of experience as an autism consultant, this book is focused on assisting those with disabilities in understanding body language; including what it means, how to identify specific emotions, and appropriate responses to the emotions of others. Written in distinct chapters covering emotions, facial expressions, posture, body orientation, eye gaze, gestures, and personal space, the book has numerous activity pages for parents, teachers or caregivers to use to assist those that have trouble interpreting body language and its importance in their daily lives.
In addition to the written and visual exercises found in the text are links to specific videos and scenes that exhibit particular body language to allow for group discussion about what the body language means in the context of the plot. The author further explains body language through the use of picture books, graphic novels, storytelling, works of art, and gesture bingo games.
This book could serve as a teaching tool not only for teachers working with students with disabilities, but also students, parents, and caregivers and would serve its purpose well in a teacher’s staffroom, a public library or as a gift for parents of special needs children. This book is a continuation of the authors’ previous book, Getting the Message: Learning to Read Facial Expressions and could serve as an additional tool for educators similar to the information found in The Everything Body Language Book and The Definitive Book of Body Language.
Reviewed by: Carol Ann Attwood, MLS, AHIP, CHIS, MPH, RN, C; Patient and Health Education Library, Mayo Clinic Arizona, Scottsdale, AZ
Fink, Candid & Kraynak, Joe. Bipolar Disorder for Dummies, 2nd edition. Wiley, 2013. 362p. index. ISBN 978-1-118-33882-7. $22.99.
The book is written for the layperson where plain language predominates, and when technical terms are used a clarifying description is given. A Bipolar-specific glossary is in the appendix. The book has an interesting balance of providing medical information and tips for coping. Medical information includes the types of Bipolar, medications that might be used and their strengths and weaknesses, and alternative treatments and herbal supplements along with the evidence (or lack thereof) for the different items. Patient and family tips include coping with major mood issues and its fall-out, getting to know and understand the disorder along with tips for self-reflection and self-help with lifestyle changes, and how to communicate with and support a loved-one with Bipolar. Additionally, practical advice is provided for understanding what to expect when hospitalization is needed. In their section on planning ahead for a mood episode, they review a number of things to do including a review of forms to help a family member stay informed from release of information authorization forms (a blank template is included) to power of attorney and even advanced directives (such as instruction or proxy directives).
The language and tone used in the text punctuates their efforts to de-stigmatize this mental disorder with greater understanding and encouraging readers to see the person dealing with a disorder not just the label. Prevention and preparation are frequent themes in the different sections. While there is no cure for Bipolar Disorder, recovery is possible and being prepared for mood episodes helps mitigate the destruction that can come along with this condition. The recurring side notes from persons coping with the disease provide a personal touch and reinforce the points the authors are making.
Candida Fink, MD provides the medical expertise while Joe Kraynak, MA provides personal perspective as a family member of a person with Bipolar Disorder. Kraynak has several books in the Dummies series and Fink is a board-certified psychiatrist in private practice working with mood disorders in children and teens. She has written The Ups and Downs of Raising a Bipolar Child: A Survival Guide for Parents.
Reviewed by: Karen Heskett, UC San Diego Library, La Jolla, CA
Hill, David L. MD, FAAP. Dad to Dad: Parenting Like a Pro. American Academy of Pediatrics, 2012. 373p. index. ISBN 978-1-58110-650-3. $14.95
Subtitled “Expert Advice, Guidance, and Insight From a Pediatrician-Dad”, Dr. Hill’s book serves as a guide to child rearing for the modern father. Clever chapter titles inject humor into learning the basic tasks of infant feeding (for the Mammary-Challenged), diapering (The Pit Crew), eye problems (Eye, Captain), colds and allergies (Snot Funny) and potty training (It’s My Potty). Each chapter begins with a “dad tip” and includes other blocked sections that give information on “what you can do” and “when to call the doctor”. The comprehensive index makes it easy to find information quickly if Dad is in crisis mode. This book would be an excellent gift for a first-time dad or a single dad. Dr. Hill’s chapter on dealing with nontraditional parenting relationships reveals his experiences as a single father. Dr. Hill is the vice president of Cape Fear Pediatrics, an adjunct professor of pediatrics at the University of the North Carolina School of Medicine, a member of the Executive Committee of the North Carolina Pediatric Society, and program director of the American Academy of Pediatrics Council on Communications and Media. He has written and recorded humorous commentaries for National Public Radio and has online videos on children’s health topics at sites including Livestrong.com and eHow.com. Highly recommended.
Reviewed by: Cynthia L. Butcher, MLS, MeadWestvaco Family Resource Center, Dayton Children’s Hospital, Dayton, Ohio.
Stronger After Stroke: Your Roadmap to Recovery is a stark assessment of the stroke patient’s need to fully engage in rehabilitation and recovery. Author Peter G. Levine, researcher and lecturer, speaks from the latest findings in brain research and his own personal experience as a physical therapist. This second edition draws upon the ever-growing evidence on neuroplasticity to give hope and guidance to the recovering patient. Levine is very hopeful, but he stresses the need for the patient to work and to work hard at recovery.
Stronger After Stroke is a handbook of exercises and treatment options. Levine describes how to do exercises and what precautions should be taken. He talks about the scientific evidence for each treatment plan, and makes clear the windows of opportunity for maximum benefit. He explains the pitfalls of the medical environment, including the impediments of insurance coverage and the habits of medical staff. Coverage and habits may not be in line with evidence-based recovery practices. This is an interesting read.
My one criticism of this book is the layout of the information. The book is dense with text and completely lacks illustrations. Written for the patient, this book may be more useful to the caregiver. The concepts are at a higher level than the newly recovering patient could cope with.
Reviewed by: Margot Malachowski, MLS; Baystate Health, Health Sciences Library, Springfield, MA
Normal pressure hydrocephalus is a neurological disorder that results from an abnormal fluid build-up in the brain. It affects approximately 350,000 Americans, most of whom are older, but its symptoms are fairly common, so diagnosis is difficult. Abnormal gait, incontinence, and mild dementia are often mistaken for Parkinson’s or Alzheimer’s, so only 11,000 of the 350,000 have been treated. The insertion of a surgical shunt, if done in a timely manner, will reverse most of the symptoms.
Dr. Mednick, a neurologist, offers a brief but thorough overview of this condition. He discusses the symptoms and explains the diagnosis and treatment in detail with a discussion of the physical and neurological examinations and tests as well as the various surgical procedures used. He also covers post-operative care and rehabilitation. A glossary and resource list offer further information. The reading level is a bit high, but the book is very useful and it is unique. This is the only book for consumers on NPH, so it is a welcome addition to library collections.
Reviewed by: Barbara M. Bibel, Oakland Public Library, Oakland, CA
Muscari, Mary E. What Nurses Know: PTSD, Demos Health, 2012. 259p., index. ISBN 978-1-9363-0306-8. $16.95.
What Nurses Know: PTSD is the eighth book in this series characterized by “What Nurses Know” sidebars. Mary E. Muscari, PhD, RN, Associate Professor, Decker School of Nursing, is a well-known parenting author of the Not My Kid books and many articles. Dr. Muscari begins the book with a chapter overview and states that people with PTSD are not “crazy” or weak. There are chapters on having a partner or a child with PTSD; readers can read the entire book or just relevant sections. The primary focus is on PTSD after abuse or war. Most chapters begin with a personal vignette, many with unsettling and graphic descriptions of trauma. There are chapters on therapy and treatment (including psychiatric nurse practitioners and eye movement desensitization and reprocessing), but most of the content centers around self-help. While some advice seems optimistic (think happy thoughts for dealing with anger), other recommendations are surprising (eat a hot pepper to deal with flashbacks and pass an ice cube from hand to hand to deal with borderline personality disorder). There is a simple checklist for self-diagnosing PTSD, a glossary created from web sources, and a resource list that sometimes provides phone numbers and other times websites. The sidebars would be better if they contained subject knowledge unique to nurses; many of them are simply names and URLs of organizations. Citations to articles in the bibliography would be helpful. With over 4,000 PTSD consumer health books available, this title would benefit from a revised edition focusing more on “what nurses know”.
Reviewed by: Cara Marcus, Brigham and Women’s Faulkner Hospital, Boston, MA
There are no sacred cows in this chatty, well-researched exposé by Dr. Offit. While trust in modern medicine is declining, the popularity of alternative, complementary, or unconventional medicine is on the rise and supported by charismatic celebrities and politicians. Dr. Offit, Infectious Disease Chief at Children’s Hospital of Philadelphia, challenges us to look beyond popular hype and search for truth and research studies to back up health claims, and believes that all therapies should be held to the same standard of proof. Plentiful examples and stories illustrate both the potential harm and benefit of alternative therapies, while other accounts reveal the power of placebo medicine and the reality that herbs and supplements are not FDA regulated. Offit does not deny that some of these therapies work; he simply asks the reader to seek out the evidence and make informed decisions about their health. The book is best suited for larger consumer health collections.
Reviewed by: Nancy O’Brien, UnityPoint Health – Des Moines, Des Moines, IA
Philyaw, Deesha and Thomas, Michael D. Co-Parenting 101: Helping Your Kids Thrive in Two Households After Divorce. New Harbinger Publications, Inc., 2013.205 p. ISBN 978-1-60882-463-2. $16.95.
Written by a "formerly married couple," Co-Parenting 101 provides practical advice and powerful co-parenting strategies to parents struggling to put the children first after a divorce. The book came about after the success of Philyaw's and Thomas's popular blog Co-Parenting 101 and online radio show Co-Parenting Matters. According to the authors and the experts they have consulted, co-parenting is a must, not an option, for divorced parents. Comprehensive in scope, the book addresses the importance of co-parenting even before the divorce is final. Find tips on ways to coordinate calendars, clothes, camps, and extracurricular activities. Discover your co-parenting style and learn how to write your own parenting plan. Especially helpful are checklists, such as 15 Things You May Want to Do (But Must Not Do) as a Co-Parent. Delicate issues like dating after divorce and when to introduce a boyfriend or girlfriend to your children are discussed. Positive and upbeat in tone, Co-Parenting 101 is an excellent handbook for parents who want to do the best for their kids after divorce. The book includes addenda of books, magazine articles, and websites for additional study. In addition, there are interviews with children, parents, and experts in the field of divorce and its effects.
Reviewed by: Judy Hansen, MAED, MLIS, Family Resource Center, St. Louis Children's Hospital, St. Louis, MO
Simpkins, C. Alexander, and Simpkins, Annellen M. The Tao of Bipolar; Using Meditation and Mindfulness to Find Balance and Peace. New Harbinger Publications, 2013. 182p. [no index] ISBN: 978-1-60882-292-8. $16.95
The authors present, with examples from research and experience with clients, their belief that meditation can help people with bipolar disorder. There are reliable print and online resources that recommend meditation as one of a number of stress reduction techniques for people with emotional illness. The authors of this book go farther, suggesting that readers will change how they look at their disorder and will achieve “feelings of well-being, balance and happiness.”
This book is for people new to meditation and the authors introduce the practice of meditation with easy and short exercises. There are also exercises for building awareness of the individual’s bipolar experience. It is difficult to compare this book to others as there are few books on bipolar disorder that focus on meditation.
The strongest parts are the two-thirds on learning meditation and easing moods. The book’s weaknesses include uneven style (alternating between encouraging messages and a challenging presentation of scientific material) and a recommended reading list that contains only books by these authors. A readability calculator found the book fairly difficult to read and written at the eleventh grade level. The authors are practicing hypnotherapists who have written multiple books on topics such as Taoism, Buddhism and meditation.
Reviewed by Diane Wolf, MSLS, Gail P. Gill Community Health Library, Christiana Care Health System, Newark DE
Velasquez-Manoff, Moises. An epidemic of Absence: A New Way of Understanding Allergies and Autoimmune Diseases. Scribner, 2012. 369 p. Index, glossary. ISBN 978-1-4391-9938-1. $26.00.
Velasques-Manoff describes his journey to understand and relieve the symptoms of allergic and immunological disease in his own body. Detailed information about the history and current thinking on immunology is presented within the framework of the author’s self-treatment. The book is well researched and includes a long list of references. There is also a glossary included, which will come in handy for those without a strong medical background. The reading level is high, however, it is written in a casual voice that makes it easy to read and understand.
The discussion on the history and evolution of parasites and microbes is fascinating. The author chronicles the evolution of Homo sapiens, the quest for a “clean” environment and how the human body has responded to the changes we have made. He calls for an “ecosystem restoration project” in which the naturally occurring parasites and microbes are allowed to co-exist with humans as they have for thousands of years.
I enjoyed the honesty with which the author narrates his personal journey with introduced parasites. He describes all aspects: the good, the bad and the ugly. He does not push a particular agenda, but presents evidence and allows the reader to make their own conclusions. It is refreshing to see a book written without bias towards a particular treatment. I would recommend the book to anyone interested in allergies, asthma and other autoimmune diseases. It highlights a new way to look at how humans are potentially impacting their own health as we try to better ourselves.
Reviewed by: Kathy East, MS, Knowledge Navigator, Central Peninsula Hospital, Soldotna, AK
Wilson-Miller, Wendie and Erika Napoletano. The Insider’s Guide to Egg Donation: A Compassionate and Comprehensive Guide for all Parents-to-Be. Demos Health, 2012. 194p. References & Index. ISBN 978-1-936303-30-4. $16.95.
The Insider’s Guide is true to its title: the authors have served as egg donors a combined total of 27 times, and Wilson-Miller owns an egg donor agency. Their book is a thorough introduction to parenting through egg donation: from the basic facts about infertility; through the decision to parent via egg donation; to finding and signing a clinic, donor, and agency. The book is written in a clear, casual style, and intended for a lay audience of prospective parents. A brief final chapter addresses issues specific to LGBT and single female readers, but the book as a whole is written to a heterosexual married audience that has arrived at egg donation because of medical infertility.
The authors’ tone veer into advocacy with unfortunate frequency, and small libraries will want to consider other books on the same subject that cover similar ground. But Wilson-Miller and Napoletano’s experience lends depth to their comments on egg donors’ motives, and helps to demystify the donors’ view of the process. Comments from egg donors, recipient parents, and physician infertility specialists appear throughout the book and round out the perspective.
The Insider’s Guide has useful navigation tools for prospective parents. The Appendices include lists of questions for families to ask reproductive clinics, egg donor agencies, donors, and themselves. Also included are sample letters of introduction from parents and egg donors, and a glossary of relevant medical terms.
Reviewed by: Mira Geffner, Breast Cancer Connections, Palo Alto, CA.
Consumer Connections (ISSN 1535-7821) is the newsletter of the Consumer and Patient Information Section of the Medical Library Association. It is published on the CAPHIS website quarterly. Notification of publication is sent via the CAPHIS listserv. CAPHIS is the largest section of the Medical Library Association.
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