Vol. 29 No. 2 2013
Message from CAPHIS Chair
MLA’13 was without a doubt a highly successful conference. The Hynes Convention Center is a bright and spacious building that served the needs of conference participants well. The cheerful greeters who gave directions, the courteous registration staff, the well-organized vendor booths and training sessions, the numerous thought-provoking section programs and plenaries, and unlimited wi-fi access that we depend on so much nowadays, ensured that all conference events were informative and went smoothly. With perfect weather in Boston, and the scenic beauty of this historic city, walking around the downtown core was a delight. As a fan of The Big Bang Theory, I enjoyed dining on Thai Lettuce Wraps at the nearby Cheesecake Factory while wistfully eying their decoratively designed cakes....
Monday May 6 2013 was packed with CAPHIS programming. From early in the morning, when chair Meredith Solomon greeted us warmly and encouraged us to dine on the fine breakfast refreshments, to the wrap-up in the evening at the board meeting, CAHPIS activities were well attended and well received. I greatly enjoyed the presentation of our Business Meeting guest speaker, Margot Malachowski, Outreach Librarian at Baystate Medical Center, Massachusetts and NN/LM Health Literacy Community of Interest Leader with the Clear: Conversations Project. I would like to take the opportunity to thank Meredith Solomon for inviting her to speak and for making all of the arrangements.
The first CAPHIS-sponsored program, Health Literacy: Linguistic and Cultural Diversity, with PH/HA as the co-lead section, and presented in partnership with the Hospital Libraries Section; Pharmacy and Drug Information Section, and the Relevant Issues Section, was a resounding success, with over a hundred attendees filling the large convention room to capacity. Capably moderated by Claire B. Joseph, Director of the Medical Library at the South Nassau Communities Hospital (Oceanside, New York), this event generated many interesting questions from the audience. Afterwards, the five speakers graciously shared their personal insights with individual members of the audience in one-to-one conversations. It was truly amazing to listen to such interesting presentations, with the first speaker, Yukiko Sakai, an Associate Professor from Keio University who has published extensively on health information seeking online in Japan, having travelled all the way from Japan to speak at this program. The second CAPHIS-sponsored program, The Provision of Health Information and Health Care Services to an Aging Population with Chronic Health Conditions, was organized in partnership with the Library Marketing SIG and the Outreach SIG and skillfully moderated by Carol Ann Attwood, MLS, AHIP, MPH, RN, C., manager of the Patient and Health Information Library at the Mayo Clinic in Arizona. The speakers gave stimulating presentations and questions from the audience were appropriately addressed throughout the session. While I was unable to attend the other programs co-organized by CAPHIS, ICML 2: Trustworthy and Authoritative Publicly Available Information and Promoting Healthy Nutrition and Natural Remedies for Environmental Health and Wellness in Humans and Animals, respectively, attendees at the CAHPIS Board meeting attested to their robust attendance.
With MLA’13 now well behind us, it is time to think about what kinds of activities CAPHIS should undertake in 2013-2014. At present, Chair-Elect Kay Hogan Smith has made substantial in-roads planning for CAPHIS programming at MLA’14, with three CAPHIS-organized programs and six co-sponsored programs underway, while Immediate Past Chair Meredith Solomon and Terri Ottosen are organizing a half-day Patient Engagement Symposium at MLA’14. Meredith has also taken the lead in planning the Ysabel Bertolucci Annual Meeting Scholarship Fund, which has received MLA board approval. This new award requires $20,000 in total to be raised, with a proposed start date for 2015. While 2014 looms in the distance, CAPHIS is well positioned to celebrate its upcoming thirtieth anniversary next year at the Annual Meeting in Chicago, headquarters of Medical Library Association.
Wishing everyone a Happy Canada Day and Fourth of July and a peaceful and relaxing summer!
Submitted by Christine Marton, PhD,
CAPHIS Chair 2013-2014
CAPHIS is pleased to announce that Jackie Davis, MLIS, is the winner of the 2013 Consumer Health Librarian of the Year Award. Jackie Davis is a consumer health librarian at the Community Health Library, Elliott and Helen Cushman Wellness Center, Sharp Memorial Outpatient Pavilion, Sharp HealthCare in San Diego, California.
Jackie Davis, MLIS, has many achievements in the field of consumer health librarianship. She is a member of Sharp HealthCare’s Patient Education Council, Integrative Medicine Committee, and Patient Family Centered Care Team. As well, she participated in the Community Health Improvement Partners’ Health Literacy Taskforce and developed a Health Information Ambassador program for Sharp HealthCare. At present, she is writing a chapter in a forthcoming book on marketing consumer health libraries. As an active CAPHIS member, she has created two webliographies for the CAPHIS website and written many book reviews for the CAPHIS Newsletter, Consumer Connections. In 2012, Jackie Davis won the Superhero Librarian award from Gale/Cengage.
Congratulations to Jackie Davis from the CAPHIS Board!
The Consumer and Patient Health Information Section of the Medical Library Association is pleased to announce that two veteran CAPHIS leaders are recipients of CAPHIS Professional Development Awards for 2013 – Meredith Solomon (Chair) and Jana Liebermann (Immediate Past-Chair). Meredith is medical librarian at INOVA Fairfax Hospital in Falls Church, VA, and Jana works at the Policy Information Center Library at the Dept. of Health and Human Services in Washington. Congratulations Meredith and Jana!
Library Patrons Seeking Health Insurance Information - Are You Ready?
On June 30th a special informational session was held during the American Library Association (ALA) meeting in Chicago, IL to announce an agreement between ALA and the US Department of Health and Human Services to disseminate information about the new opportunities for the public to enroll in health insurance plans beginning on October 1st as part of the Affordable Care Act (ACA). WebJunction, the training and service division of OCLC, is also a partner who will offer toolkits and webinars, and the National Network of Library of Medicine (NN/LM) will assist in raising public awareness. More information about the ALA presentation is available at http://www.americanlibrariesmagazine.org/blog/prescription-finding-healthcare-information.
Resources recommended to learn more about health insurance plans by the ALA presentation panelists include HealthCare.gov for consumers, Health Insurance Marketplace for professionals, and the MedlinePlus Health Insurance page.
Submitted by: Nikki Dettmar, Consumer Connections Editor, Education and Assessment Coordinator, National Network of Libraries of Medicine, Pacific Northwest Region, Seattle, WA
Froehlke, Margaret and Robin Zaborek. When Down Syndrome and Autism Intersect: A Guide to DS-ASD for Parents and Professionals. Woodbine House, 2013.235 p. Index. ISBN 978-1-60613-160-2. $29.95.
Many books are available on either Down syndrome or autism but this title examines the co-occurrence of both disorders. This much needed resource, written and edited by Margaret Froehlke, a registered nurse and parent, and Robin Zaborek a Certified Nursing Assistant and parent, will become the go-to manual for both parents and professionals. The well-organized Table of Contents takes you through many of the aspects of life with people with both Down syndrome (DS) and Autism Spectrum Disorder (ASD), beginning with diagnosis, genetics and behavior to advice on doctors’ visits, behavior problems, and life planning.
In addition to the information written by the two authors, the chapters are written by professionals and experts in the field. For example, Chapter 8 is devoted to oral health care, given the unique dental and oro-facial findings of children with DS-ASD. The chapter written by David Tesini, a pediatric dentist and Associate Clinical Professor at Tufts University and Chief Dentist at Tufts Dental Facilities for Patients with Special Needs, explains the dental characteristics, early infant care and how to overcome the behavior barrier. Chapter authors also include physicians, psychologists, family therapists and parents.
This primer is an excellent compilation of information for parents seeking help and advice as well as healthcare providers and school personnel who may also need help in assisting children and teens and their families.
Reviewed by Lynn Sette, Cushing/Whitney Medical Library, Yale University, New Haven, CT.
Harris, Sandra L. Siblings of Children with Autism: A Guide for Families
. Woodbine House, 2012, third edition. 59p. index. ISBN 978-1-60613-074-2. $21.95.
It is always helpful to have books in our collection for the siblings of children with medical problems. Often, they are left out of the mix with doctor’s appointments, medical bills that leave less money for their interests and the extra time parents spend with a child who has a disability, just to name a few reasons. The authors describe how the unaffected siblings view this decrease in attention they receive and the importance of proper communication among family members so that siblings understand why this is the case.
Harris and Glasberg have spent more than 50 years helping people with autism spectrum disorders of all ages and their family members. This updated, third edition has seven chapters covering topics such as what siblings think about autism, how to explain autism to children, using the resources in your community for help, and much more. I think one of the most valuable aspects of the book is the “Parents Speak” sections in most chapters where families journal their personal experiences with the chapter topic.
The book is heavy with references to the developmental milestones children experience and how the different ages and stages affect their view of their autistic sibling. Then, the authors advise parents how best to handle these stages. The book ends with a Resource Guide that includes organizations, a bibliography of books for different ages and helpful websites.
Reviewed by: Judy Griggs, Akron Children’s Hospital, Akron, OH
Hudson, Hilton H., Watson, Karol E., Williams, Richard Allen. The Heart of the Matter: Essential Advice for a Healthy Heart from Renowned Surgeons and Cardiologists
. Hilton, 2008. 142p. ISBN 0-9743144-4-7. $17.95.
The implications of an unhealthy heart are serious and certain cardiac issues can be curtailed or prevented. This is the central message that experienced cardiologist and health literacy expert Dr. Hilton Hudson lays out in his book, now in the third edition.
Dr. Hudson and his colleagues share common health scenarios followed by straightforward advice that the reader can follow to avert such problems from happening in the future. The team of authors dispel common misconceptions and dispense heart healthy advice with vigor—sometimes in all caps and with multiple exclamation points. It’s not hard to infer that they have each encountered these heart health situations many times before and wish to equip readers with the proper knowledge of what to do in the case of a coronary event.
The book contains two appendices which include a glossary of specific terms as well as heart healthy recipes. Dr. Hudson is a health literacy specialist, and that is apparent in the easy to read text throughout the book. The sensible advice and the steps of action make this an attractive manual for the patient interested in managing his or her heart health.
Reviewed by: Darell Schmick, University of Missouri, Columbia, MO.
Kennedy, Patricia, editor. The Can Do Multiple Sclerosis Guide to Lifestyle Empowerment
. Demos Health, 2013. 158 p., index. ISBN: 9781936303182 $18.95.
Murray, T. Jock, Saunders, Carol S. & Holland, Nancy J. Multiple Sclerosis: A Guide for the Newly Diagnosed
, 4th ed. Demos Health, 2013. 264 p., index. ISBN: 9781936303366. $18.95.
These two recent publications about Multiple Sclerosis (MS) complement each other nicely in the information they provide about this disease. The Can Do Multiple Sclerosis Guide to Lifestyle Empowerment is edited by Patricia Kennedy, a nurse educator for Can Do Multiple Sclerosis (Can Do MS), and is comprised of chapters written by a range of experts associated with this organization. Can Do MS was founded in 1984 to encourage those diagnosed with MS to live rich lives by placing the emphasis on what they can do to manage their MS. The tone of this book is upbeat and encouraging, and it contains many practical suggestions about a variety of topics: exercise, nutrition, mood and cognitive challenges, symptom management, and the overall challenges of a chronic condition like MS. The importance of having a team of healthcare providers is stressed throughout. The final chapter for spouses/ support partners will be especially helpful for those closest to the person with MS. This book is well written and easy to understand with important points highlighted in text boxes in each of the chapters. It is highly recommended for most consumer health collections.
Multiple Sclerosis: A Guide for the Newly Diagnosed is written by experts associated with the Consortium of MS Centers and the National Multiple Sclerosis Society and provides a comprehensive overview of most of the medical aspects of MS. It contains information about the history of MS, its diagnosis, treatment, possible causes, clinical trials and current research. Generally these chapters are written at a high reading level and contain much detail that may be of interest to those wishing to know more about the disease process in the Central Nervous System and how it influences each of the aforementioned topics. Helpful information about the efficacy, risks, benefits and costs of a wide variety of complementary and alternative approaches is also included. Especially useful and easier to read is information provided about coping, everyday living with MS, employment and financial planning. The tone in these chapters is positive and the authors frequently encourage the reader to contact organizations like the National MS Society for more information about these and other topics. The book includes a chapter with details about a variety of associations and organizations that seek to support people with MS, and also contains a glossary and recommendations for other books about various aspects of MS, primarily published by Demos Health. Both books would make good additions to most consumer health collections, and there is minimal overlap in the information included in each.
Reviewed by: Deborah Magnan, Samuel and Sandra Hekemian Medical Library, Hackensack University Medical Center, Hackensack, NJ
McGuckin, Maryanne. The Patient Survival Guide: 8 Simple Solutions to Prevent Hospital- and Healthcare-Associated Infections
, Demos Health, 2012. 222p., index. ISBN 978-1-936303-31-1. $16.95.
While there have been a few consumer health books about infections, including Infection Protection
(Medical Development Management, 2003) and Smart Guide To Fighting Infections
(Smart Guide Publications, 2012), this book appears to be the first devoted to healthcare-associated infections. Dr. Maryanne McGuckin is well-known in the field; she served on CDC and WHO taskforces on hand hygiene and developed the first national postgraduate infection control program. She has taken an important and frightening topic and written a book to empower patients and families to work with providers to reduce their risks. Stories and photos of patients who have developed infections neither sensationalize nor minimize risk of infection or potential outcomes. She acknowledges that there is risk even in the best hospitals that take every precaution, but advises patients, “You can’t let this information keep you from checking into a hospital.”
Rather, she provides essential tools patient can use to greatly minimize risk, such as checklists, wallet cards with simple instructions, clear step-by-step illustrations of handwashing and hand sanitizing, and extensive resources with ways to receive help if someone acquires a healthcare-associated infection. Every chapter contains FAQs with clear answers, the most recent statistics available, infection prevention checklists by topic (urinary catheters, ventilators, nursing homes, etc.), a glossary, and Greek and Latin roots of bacteria and viruses. There is much repetition (“Tell your providers to wash their hands”) because people frequently forget even if they know they should do this. While parts of this book may be upsetting to read, it is important knowledge that should be shared - readers of The Patient Survival Guide could potentially save their or loved ones lives.
Reviewed by: Cara Marcus, Brigham and Women’s Faulkner Hospital, Boston, MA
Sacks, Oliver. Hallucinations
. Knopf, 2012. 352p. index. ISBN- 978-0307957245. $26.95.
Oliver Sacks, professor of neurology and psychiatry at Columbia University, has written many books on the strange tricks the brain can play on its unsuspecting owner. In Hallucinations
, he expands on concepts that he has sometimes presented in other books and organizes them into a comprehensive overview of the misleading ways of the mind.
This book is not light reading. It is ideal for the person who is fascinated with how the brain works and why it doesn’t always function as expected. I would also recommend it to people who are dealing with this disquieting aspect of life either in themselves or in loved ones. It explains some of the reasons for hallucinations and just how common they are. There are as many different types of hallucinations covered in this book as there are reasons for them. Chapters are focused on either the type or the cause, making it useful as a reference book for consumers interested in specific health problems. Blindness, Parkinson’s disease, migraines, epilepsy, limb loss, sleep-related visions are all gathered in chapters that stand on their own and could provide insight and comfort.
Sacks beautifully blends examples from history, medical texts, literature and patient experience to create a fascinating tour of the many causes and manifestations of hallucinations He enhances his examples with numerous interesting footnotes. The nonjudgmental way he deals with these topics leads the reader to the understanding that hallucinations are symptoms of a disease state, or a chemical state that affects the brain, and many people live very productive normal lives while experiencing them.
This book is recommended for all consumer health resource centers and public libraries.
Reviewed by: Laura Brown, City of Hope, Lee Graff Medical and Scientific Library, Duarte, CA.
Consumer Connections (ISSN 1535-7821) is the newsletter of the Consumer and Patient Information Section of the Medical Library Association. It is published on the CAPHIS website quarterly. Notification of publication is sent via the CAPHIS listserv. CAPHIS is the largest section of the Medical Library Association.
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