ISSN 1535-7821 Vol. 27 No. 1 2011
In Minneapolis for MLA? Don’t miss these exciting CAPHIS sponsored and co-sponsored events!
5th Annual Lecture on the Evidence Base, Sponsored by StatRef: Rethinking the Librarian’s Role in EHR/PHR/EMR – A Place at the Table
Sunday, May 15 – 4:30 PM – 6:00 PM
Being there: the Embedded Librarian
Monday, May 16 – 10:30AM – 12:00 PM
CAPHIS Business Meeting w/ special presentation: A Virtual Tour of the Barbara Woodward Lips Patient Education Resource Center at Mayo Clinic (tour from 4:35-5:05)
Monday, May 16 – 4:30 PM – 6:00 PM
Serving the Information Needs of a Multilingual/Multicultural Clientele
Tuesday: 3:00 PM – 4:30 PM
Submitted by: Jana Liebermann, CAPHIS Chair, 2011- 2012
The American Library Association’s Choice magazine, which reviews books and online resources for academic libraries, included a review of AMA Resources for Patients in its December issue. The reviewer, J.S. Whelan of Harvard Medical School, rates this website as "not recommended" and suggests instead that "The Consumer and Patient health Information Section (CAPHIS) of the Medical Library Association compiles the Top 100 List: Health Websites You Can Trust, with entries accompanied by brief reviews. Along with the sites mentioned above (MedlinePlus, Hardin MD), the General Health section of this list http://caphis.mlanet.org/consumer/generalheatlh.html covers many more topics and delivers information in a wider variety of formats."
The reviewer noted that the AMA site was not easy to read despite the organization's advocacy for health literacy. The Atlas of the Body Section of the site has only simple line drawings, unlike the animations and color illustrations in MedlinePlus. This means that our work is appreciated, so we can congratulate ourselves and resolve to continue doing a great job in 2011.
Submitted by: Barbara Bibel, Oakland Public Library, Oakland, CA.
Janet Schnall, MS, AHIP, University of Washington Health Sciences Library liaison to the School of Nursing and Medical Library Association allied representative to the Interagency Council on Information Resources in Nursing, also recommended the CAPHIS Top 100 Health Websites You Can Trust (in the article Who Can You (and Your Patients) Trust for Online Health Information? in an article for the Nursing News section of http://NurseZone.com, an online community designed by and for nurses.
Submitted by: Nikki Dettmar, Education and Assessment Coordinator, National Network of Libraries of Medicine Pacific Northwest Region, Seattle, WA.
Written by an APN, nurses and psychologist and published by the American Gastroenterological Association, this book helps one get control of their irritable bowel syndrome (IBS) and discusses an eight week plan to control IBS symptoms.
During Week 1, the book covers the basics of IBS and has one start a journal for keeping track of your symptoms and the scale for the how bad the symptoms are. Week 2 discusses the way to look at food as well as identify foods that will trigger a reaction. Week 3 talks about ways to relax and how changing your thoughts can help relieve IBS symptoms. Week 4 speaks to fiber and ways to problem solve IBS issues. Week 5 is about autogenics, defined as "a type of self-induced relaxation created by experiencing the sensations of warmth and heaviness," and false beliefs (negative perceptions). Week 6 helps one deal with the most common topic for IBS – Pain Control. Also in this week readers learn how sleep will help them feel better. Week 7 aids readers outside their comfort zones whether eating out, traveling, relaxing anywhere and the often taboo topic of physical intimacy. Week 8 is the culmination of all the other weeks and helps readers move forward with IBS symptoms control. In the appendix, medication for IBS symptoms and worksheets the reader can use with the various weeks are provided.
I have personally tried some of the suggestions and now understand more about my IBS than I did before I reviewed this book!
Reviewed by: Keydi Boss O’Hagan, MLS, AHIP, Medical Librarian, Holy Name Medical Center, Teaneck, NJ
Dr. Chodak, a urologist with years of clinical practice and teaching experience, has written an extremely comprehensive book. Everything from prevention and screening (should one or shouldn’t one) to the various forms of testing pros and cons, to the complexities of treatment options is thoroughly discussed. The complex nature of prostate cancer makes choosing the best treatment very individual, and there is much seemingly contradictory information out there for men trying to decide.
One of the unique aspects of Chodak’s writing is the objectivity and respect for patient empowerment through knowledge that is clearly evident. Historical views, changes, studies, and controversies in screening, testing, and treatment approaches are exhaustively explored and presented in a format that most consumers would find easily readable. The detail within the table of contents allows readers to almost use it as an index, in order to more closely pinpoint the exact information they are looking at with their doctors. Chodak gives men the benefits and risks to their choices, to help enable them to make the best informed decisions in partnership with their doctors based on their unique situations, rather than just telling them the "best" treatment. He is also not afraid to state that much of the information about this disease is still emerging, and doctors are still learning.
This work concludes with a glossary, reference list, and index. An exceptional reference to help guide, rather than persuade as others tend to do, men looking at their choices. Highly recommended for all consumer health collections.
Reviewed by: Amy Six-Means, MLIS. Hanesbrands Health Learning Center, Sara Lee Center for Women’s Health, Forsyth Medical Center. Winston-Salem, NC
Dennis, Melinda MS, RD, LDN, and Leffler, Daniel A., MD, Real Life with Celiac Disease: Troubleshooting and Thriving Gluten Free. American Gastroenterological Association Press 2011, 361P, Index, ISBN 978-1-60356-008-5. $18.95
More than just a "self-help" book for newly diagnosed patient and their families, this reference book is full of facts and statistics presented both within the text and in well designed tables. In addition, the book contains other assets characteristic of a reference book; an excellent glossary and easy to use index, and additional features include "Self Management Tips" and references in each chapter.
Unlike a recent celebrity authored book, The G-free diet : a Gluten-free Survival Guide, this book is not centered on the experience of one person. Rather, the book is told from the perspective of many individuals as chapters each begin with a patient case. Patient cases are selected to elaborate a specific aspect of diagnosis, treatment, prognosis, complications and even social implications of celiac disease. As the chapter unfolds, the patient story is woven in with the facts, which engages the reader with an easy to read and informative format.
The titles of other books such as Celiac Disease: A Guide to Living with Gluten Intoleranceand The First Year Celiac Disease and Living Gluten Free appear to offer similar information. However, librarians should be cautious when making a selection. While these titles contain useful information written in laymen’s terms and helpful recipes, they do not offer the same level of facts and science that Dennis and Leffler present.
The authors are both health care professionals at Beth Israel Deaconess Medical Center in Boston, Massachusetts. Doctor Daniel A. Leffler is the Director of Clinical while Melinda Dennis is the Nutrition Coordinator. In addition, Melinda Dennis, was diagnosed with celiac disease 20 years ago.
Reviewed by: Sandy Oelschlegel, MLIS, AHIP University of Tennessee Graduate School of Medicine Preston Medical Library, Knoxville, TN.
Fossel, Michael, Greta Blackburn, and Dave Wynarowski. The Immortality Edge: Realize the Secrets of Your Telomeres for a Longer, Healthier Life. John Wiley & Sons, Inc., 2011. 272p. ISBN 978-0-470-87390-8. $25.95.
This book is based on the telomeres and telomerase research that won the Nobel Prize in Medicine for 2009, however it seems to be very loosely based. The authors truly believe that within the next 20 years a pill will be created that can slow, reverse, or possibly even stop the aging process. In the meantime they offer this plan that will supposedly keep you younger for longer. Dr. Fossel is an expert on aging and telomeres, while Ms. Blackburn is a fitness expert, and Dr. Woynaroski is a leading authority on supplements.
The book contains a good deal of scientific language, but it is easy to read and grasp considering its depth. After explaining telomeres and the current research, the authors outline an immortality plan that outside of the very specific supplement recommendations could be found in many diet and fitness books: eat less, move more, and reduce stress. The recommended supplements, which would total nearly 15 pills a day, seem suspect when considering one of the author’s ownership of a supplement company.
Overall the book presents a plan that might be too good to be true, especially as the scientific proof that the steps in the immortality plan will actually slow aging and prevent diseases is lacking. It seems that the authors might be assuming that the scientific studies are further along than they really are. The authors are playing on the emotions of readers who fear getting old with an "immortality promise" that might or might not be real.
Reviewed by: Courtney Britton, Librarian and Resource Center Coordinator, Cancer Services of Greater Baton Rouge, Baton Rouge, LA
Many pregnant women have concerns about pain during childbirth and the options available to them for pain relief during labor. Gilbert J. Grant, MD, the director of Obstetric Anesthesia at NYU Langone Medical Center in New York, feels strongly that each woman should make an informed decision about pain management for labor and childbirth, preferably prior to the beginning of labor and after a discussion with her health care provider.
This book provides a thorough discussion of medical approaches to pain relief during labor. Epidural, spinal and combined epidural-spinal analgesia are explained in detail with helpful accompanying drawings. Additional sections/chapters address walking epidurals, patient controlled epidural analgesia, the timing of analgesia during labor, anesthesia options for Cesarean delivery, pain relief after delivery, and the risks of spinal and epidural analgesia. Each chapter concludes with a summary, highlighted in text boxes labeled "Key Concepts to Carry Away." A list of references and a helpful glossary of medical terms conclude the book.
Grant writes in a reassuring manner and addresses many of the concerns women may have about analgesia and anesthesia. At times however he moves from providing information to what appears to be advocating for labor analgesia, and he tends to take a negative tone when discussing natural childbirth as an option. Easy Labor: Every Woman’s Guide to Choosing Less Pain and More Joy During Childbirth, published in 2006, provides a more comprehensive review of this topic. However, as most books on pregnancy and childbirth contain only a few pages about labor analgesia and anesthesia, and do not provide the updated, detailed information found in Epidural Without Guilt: Childbirth Without Pain, this book is recommended for most consumer health libraries.
Reviewed by: Deborah Magnan, Samuel and Sandra Hekemian Medical Library, Hackensack University Medical Center, Hackensack, NJ
This book helps children develop communication, motor and social skills through cooking activities and along with the included CD-ROM set are designed to be fun and educational for all families including those with special needs. Author Gabrielle Kaplan-Mayer is a freelance writer, cooking instructor, and mother of a son with autism. Her approach to parents and children reflects her understanding of autism, Down syndrome, and attention deficit hyperactivity disorder (ADHD). All of the recipes are gluten-free (GF) and many are casein-free (CF).
The strength of this cookbook is the way Kaplan-Mayer weaves "framing" into the cooking activities. Framing is setting up an activity for the child’s developmental level so that the activity is a success. Reducing clutter and preparing for noise (blenders!) will lead to a more successful experience. Modifying cooking techniques to honor a child’s developmental level and sensory sensitivities leads to a more pleasurable activity for everyone.
The accompanying CD-ROM is a delightful set of visual cooking instructions in pdfs. Kaplan-Mayer encourages readers to print out, laminate, and place instructions in a binder for repeated use. Readers may insert pictures of their families into the pdfs for a customized experience of the book.
The author believes that dietary interventions help her son but she does not believe that her son will be cured through diet. She is an advocate of cooking as a culturally rich experience for families. She encourages readers to adapt recipes to fit their own dietary needs. Kaplan-Mayer is online at www.kitchenclassroom4kids.com
Reviewed by: Margot Malachowski, MLS, Baystate Health Sciences Library, Springfield, MA
Mertig (Teaching Nursing in an Associate Degree Program and The Nurses’ Guide to Teaching Diabetes Self-Management) Registered Nurse, diabetes patient, and diabetes support group leader provides readers with information to manage their diabetes successfully. The book is aimed at type 1, type 2, and gestational diabetes patients and their family members. Patients and the family members of patients will find this book useful in understanding more about this complex disease and how to manage it and avoid or delay associated complications.
Mertig begins with an overview of what diabetes is. She explains glucose regulation and provides a succinct explanation of the different types of diabetes. The next chapters provide effective ways of diabetes management through healthy eating and exercise. Mertig provides readers with practical advice about types of foods to eat and types of physical activity to engage in. The chapter on diabetes medications provides patients with a list and overview of the drugs used to treat diabetes and information about insulin pumps and clinical trials. The book also provides websites for finding free or reduced cost medications. Essential to proper diabetes management is regular glucose monitoring and the author provides information about its importance along with tips and suggestions for regulating glucose and avoiding diabetes complications. In addition to the medical management of diabetes, the author suggests ways patients can deal with depression, anger, and frustration that may develop after a diabetes diagnosis. She also explains how to find help through the health care team, support groups, family, and friends.
The text is very well written and filled with helpful tips and advice for anyone with diabetes. The book is written on a somewhat higher reading level and a little more in-depth than most consumer level books about diabetes so would be an excellent resource for those who have read about diabetes basics but would like to know more. The title includes a glossary and list of additional resources. What Nurses Know . . . Diabetes is highly recommended for public libraries and consumer health collections.
Reviewed by: Dana Ladd, Community Health Education Center, Tompkins-McCaw Library for the Health Sciences, VCU Libraries. Richmond, VA.
This book is based on psychiatrist Loren Olson’s research as well as his own life as a gay man who came out at the age of forty. The research, which Olson has presented at the World Congress of Psychiatry, was comprised of a survey and interviews of mature homosexual men. One of the goals of the book is to answer the question "How could you not know that you were gay until the age of forty?"
The format of the book negatively influences the flow and understanding of the subject. Throughout the book are statements in bold print; some are restatements of part of the text and others are paraphrased. These statements tend to distract readers rather than enhance the content. The book is divided into eleven chapters with occasional subchapters; the titles of the chapters do not guide the reader as to essence of the chapter. The author’s thought process is difficult to follow. For example, he discusses his father’s accidental death and abruptly moves on to reference Pope Benedict XVI and Charles Darwin; the reader is left to figure out the connection between the three. In another instance, the author leaps from discussing his grandfather’s suicide to depression among homosexuals.
The author seems to find his voice near the end of the book in the chapter entitled "In Your Weariness: In the Morning You Start Again." He discusses the core issues of coming out at a mature age: changing a highly personal value system, reliving adolescence as a gay man, integrating past life with a spouse and children, and dealing with physical changes in the body. The book includes references which range from authoritative journal articles to movies to web sites.
For the consumer health librarian looking to add a book on homosexuality to the collection, the following are recommended instead of this title: Stranger at the Gate: To Be Gay and Christian in America by Mel White who was a committed family man for 25 years before coming out, and
Crisis: 40 Stories Revealing the Personal, Social, and Religious Pain and Trauma of Growing Up Gay in America by Mitchell Gold who has collected stories from people from all walks of life.
Reviewed by: Donna J. McCloskey, MLIS, AHIP, Presbyterian Hospital Huntersville Health Information Center, Huntersville, NC
Although the facesheet notes that "top cosmetic scientists answer your questions about the lotions, potions, and other beauty products you use every day", this book did not list a group of scientists responsible for the writing or reviewing of the text. In the reference list for each chapter the year of publication is not listed on articles that are cited, and would be problematic for a consumer not aware of the timeliness and currency of health information. Chapters cover hair products, tips for caring for your hair, skin treatments, makeup and scandals and secrets of the beauty business.
Written in a casual question and answer format, very few of the responses are evidence based including the question in the title whose answer did not appear until page 108 of the text. The text is also printed on a very pale beige color over shaded areas and may be difficult for the visually impaired to read. This book is recommended only for those consumer centers who want catchy titles with very little substance attached to accompany the questions posed.
Other titles that might be helpful are Cosmetic Dermatology: Principles and Practice, Second Edition, 2009 by Leslie Bauman, MD who teaches at the University of Miami or Milady’s Skin Care and Cosmetic Ingredients Dictionary, 3rd Edition, 2009.
Reviewed by: Carol Ann Attwood, MLS, AHIP, CHIS, MPH, RN,C, Mayo Clinic, Scottsdale, AZ
Suzanne Schlosberg and Liz Neporent offer an entertaining overview of how to eat right, exercise and get fit at any age. The latest addition to the popular Dummies series, Fitness for Dummies provides just the right amount of information to inspire even the most devoted couch potato to rethink, recharge and get active. Schlosberg, a fitness and health writer and co-author Neporent, a columnist and blogger for AOL Health, help readers understand how to test their current level of fitness and and create a fitness plan tailored to their current activity and fitness level and age.
While the book is clearly aimed at those who are not active lifestyle devotees, it still provides even seasoned enthusiasts with needed information about altering routines and goals according to lifestyle changes and injuries. The information is highly readable, well-organized, and clear and concise enough to be useful for all readers and is delivered in a voice that sounds like your best friend dispensing advice. The seven chapters begin with an introduction to fitness and nutrition and cover all the essentials of cardiovascular exercise, muscle and strength training; stretching and improving flexibility and balance; fitness in home gyms and health clubs; exercising as you age and during pregnancy, and concludes with inspiration and ten recommendations for equipment. Along the way readers can learn to make better informed choices on which exercises will work best for their individual needs. The weakest part of this commendable guide is chapter 4, "Educating Yourself," which provides very broad suggestions about how to find quality health information and fails to direct consumers to their public librarians for help in filtering out the wheat from the chaff.
Finally, getting healthy requires a commitment to eating right and becoming more active, and that is never easy. Schlosberg and Neporent take some of the work out of workout with this book, which is bound to inspire and inform many readers worldwide and for that reason this book is recommended for all health collections.
Reviewed by: Gail Y Hendler, Tufts University, Boston MA
Ms. Webster has created a terrific book on visiting the dentist that was intended for children with special needs but all children will benefit from the content. This book walks a child through the process of a dental visit. Starting in the receptionist area, the child learns how to check in for her appointment and then wait in the waiting room. A clock symbol on the wall reinforces the concept of waiting their turn. When the African-American dentist is ready for his patient, he greets her with an outstretched hand and a friendly smile. In fact, all faces throughout the book are smiling. The text is consistently at the bottom of each page and is made up of short sentences with concrete ideas such as "I sit on the big chair". Webster’s text is paired with illustrations created by David Ryley . His drawings are simple and uncluttered with only the most important items on the page. Using just a few colors, he outlines the components of each illustration in a solid black line adding to the simplicity of each illustration. The text matches the illustration above it very well.
Depicting the dentist with and without his mask and gloves will help to dispel fear and prepare the child for what he/she will see. Ryley smartly draws the dentist using two dental tools inside the child’s mouth while the text on that page ends with "It doesn’t hurt". In the end, the child gets a thumbs up from the dentist and a new tooth brush. The author suggests using this book with children for whom English is a second language to help build vocabulary and language skills. This is a great book to prepare any child for a first dental visit as it does a great job of explaining events that might scare or upset them.
As part of the "Off We Go" series, this book prepares a child for a trip to the grocery store. The two characters in the story, a mother and her young daughter, are first depicted making a grocery list. Each phase of the shopping trip is illustrated to even include parking the car in the parking lot. There is limited text on each page discussing common behaviors a child will encounter. David Ryley’s drawings use limited color with black outline and multi-ethnic characters. The author touches on the concept of waiting and Ryley illustrates it with a drawing of the two main characters standing third in the checkout line with a large clock symbol for reinforcement. Every face throughout the book is smiling; preparing the child for a pleasant visit. Webster also prepares the reader for the overstimulation that a trip to the grocery store could offer to children with and without special needs. She uses simple words such as "bright", "noisy" and "busy" to describe one scene, but ending the page with "It’s okay". Children, with their concrete learning needs, will benefit from having this book read to them as it chronicles the major highlights of a grocery store visit with short sentences and simple illustrations.
The third in the "Off We Go" series, "Off We Go for a Haircut" introduces young children to the process of getting a haircut. We see a young girl having her hair washed, cut and blown dry smiling all the while reassuring the reader that this is a positive experience. The characteristic simple text and uncluttered illustrations are well paired. There are reassuring messages throughout the story such as "It will be over soon", "The scissors don’t hurt" and "Uthe hairdryer….makes a loud noise". Any child will have a good idea of what to expect on a trip to the hair salon.
Series reviewed by: Judy Griggs, Akron Children’s Hospital, Akron, Ohio
There are less than five consumer health books focusing on Ankylosing Spondylitis on the marketplace currently. This new offering, by Michael H. Weisman, MD, Director of Rheumatology and Professor of Medicine at Cedars-Sinai Medical Center, is endorsed by the Spondylitis Association of America. Dr. Weisman is an eminent researcher with over 200 papers and books to his credit. This book focuses largely on symptoms and co-morbidities and includes sections on disease management and future research directions. Sections open with chapter overviews and scopes. Anatomical illustrations and photographs are culled from a variety of sources. Two back exercises are included in the proof, but in different chapters, and only one includes a diagram.
While the author strives to include definitions to help the layperson understand this book and includes a glossary, the book’s content and vocabulary often seem geared more toward professionals (pain may have a "gradual, insidious onset" and a table for the Modified New York Classification Criteria for Ankylosing Spondylitis is shown without an explanation of how to understand the grading system). Readability tests placed the text at a college to graduate school reading level. In the proof I reviewed, there was only one research statement that included a reference citation; including more references would be helpful, as well as an appendix of organizations and support groups.
While older, Ankylosing Spondylitis: The Facts(Oxford University Press, 2002) may be an easier book for consumers to use as a starting point in their knowledge of the disease and its management.
Reviewed by: Cara Marcus, Faulkner Hospital, Boston, MA
Consumer Connections (ISSN 1535-7821) is the newsletter of the Consumer and Patient Information Section of the Medical Library Association. It is published on the CAPHIS website quarterly. Notification of publication is sent via the CAPHIS listserv. CAPHIS is the largest section of the Medical Library Association.
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