ISSN 1535-7821 Vol. 26 No. 2 2010
Select Updates from the CAPHIS Business Meeting May 24, 2010, MLA 2010, Washington, DC
The meeting was well attended as there were too many people for the seats in the room at 7:30am. Program Chair Rhonda Allard reported on the CAPHIS sponsored program, "Traffic Is a Good Thing." She noted that CAPHIS cosponsored programs with the Technical Services Section, "Reflecting on Our Past and Connecting to Our Future" and the Cancer Librarians Section, "Providing Quality Complementary and Alternative Medicine Information to Cancer Patients," and the Research Section, "Electronic Health Record and Librarians: Potential Roles and Opportunities for Information Research." CAPHIS Chair Ysabel Bertolucci then introduced a visitor from the MLA board, Jane Blumenthal. Jane reported on the board activities, including the Rising Stars pilot project. She said they hoped to reach out to sections for identification of new energetic leaders that might be groomed. She then invited questions from attendees.
Ysabel asked Jana Liebermann to report on the 2011 program. Jana asked for ideas and noted ideas raised at the executive committee meeting, including health reform and its relevance to consumer health information (CHI), the electronic health record (EHR) and privacy issues, Medline Connect, and hospital CHI resource centers without librarians. Michelle suggested something on CHI librarians dealing with challenges and embedding ourselves to be a part of the process of change within our institutions. Jana said she thought both philosophical and practical program ideas were good. She also suggested evaluation of programs as another programming idea for CAPHIS. Linda Butson suggested something on competing with non-university affiliated consumer health resources, such as patient navigators in a hospital. Jana thought that perhaps something on marketing departments, health educators and librarians working together might be good. Rhonda suggested a focused program including practical guidance on managing a consumer health resource center along with promoting our value as librarians. Michelle agreed that a program on communicating our value would be valuable. Meredith suggested cosponsoring such a program with the Leadership Section. Jane suggested talking to the Rising Star peers about this idea, letting them know about CAPHIS’ interest in this issue of self-promotion. Meredith suggested it might be worthwhile to host a preconference symposium based on this issue. Michelle stressed that it was important for us to communicate to administration our worth. Barbara Bibel noted that public librarians also had to deal with city administrators looking to cut costs by eliminating library services. Patricia Reusing spoke about a palliative care pilot project in a patient-centered care lounge in her institution. She suggested finding something the CEO loves and embedding yourself in the program. Jana asked what about the EHR idea? Meredith said she thought other sections may be planning programming on that same idea. Rhonda agreed that the problem with EHR was that it could "shake out" in multiple ways.
Ysabel introduced Steven Luce of the CDC, who had asked to speak to the CAPHIS members about the new CDC National Environmental Public Health Tracking Network (www.cdc.gov/ephtracking). Steven described the Tracking Network as an organizational shift in focus from infectious disease to environmental health. This network data will be used to correlate information on environmental issues with data on health issues as they arise. It also allows users to find local environmental health data. In addition, there will be some funding opportunities through this network. Jana asked about end-user input, and mentioned her concern about alarming consumers. Steven noted that the data were being made available in order for local entities to build programs based on that data. The CDC were not recommending actions on part of the users. He also noted that privacy laws prevented access to some data at "very" local levels; that data would be available only to professionals with a need to know. Tricia Reusing asked if this product replicated NLM's Toxtown. Steven said they were working with partnering agencies to reduce such duplication. He wrapped up his comments by inviting attendees to visit the Environmental Public Health Tracking Network exhibit booth in the exhibit hall.
Ysabel then introduced Barbara Bibel who announced that the 2010 Outstanding Consumer Health Information Service Award from CAPHIS was awarded to Michelle Spatz. Barbara stated that this recognition was long overdue, noting Michelle's long service as past chair of CAPHIS, CE instructor and book author in addition to her work as CHI librarian. Michelle responded to the announcement, saying it was a "total surprise". She professed that she was &passionate" about her work, "fully believing" in what we do. She was "deeply moved" by the honor.
Ysabel turned over the chairmanship to Rhonda, stating that it was wonderful to be chair and recommending involvement in CAPHIS to other members. Rhonda thanked Ysabel as she assumed the chairmanship. Michelle thanked both Ysabel and Rhonda for the CAPHIS program this year. Ysabel closed the meeting by recommending attendance at the Janet Doe lecture that morning.
Submitted by: Kay Hogan Smith, CAPHIS Secretary
Congratulations to the raffle winners during the Section Shuffle at MLA 2010! They are:
Christina Seeger, CPhT, MLA, AHIP
University of the Incarnate Word
San Antonio Texas
Della Shupe, MA.
Northwestern Health Sciences Library
Elaine Alligood, MLS
Department of Veterans Affairs
Tracy Shields, MSIS
Kay Deeney, MLS, AHIP
NN/LM Pacific Southwest Region
Congratulations to our newly elected officers!
Submitted by: Kay Hogan Smith, CAPHIS Secretary
MedlinePlus (http://medlineplus.gov/) now has a new look!
The entire site has been redesigned with a distinctive color schemes for English and Spanish and a new layout. The redesigned site incorporates suggestions from users, simplified navigation, emphasizes search, and offers new Web 2.0 technologies that help users share content. Check out the new widgets page (http://www.nlm.nih.gov/medlineplus/widgets.html), where you can find options for embedding MedlinePlus content on your own blog of site. We invite you to visit MedlinePlus to see the changes and new features for yourself. Let us know what you think of the new design by clicking the Contact Us link that appears on every page.
MedlinePlus resources win NIH Plain Language/Clear Communication Awards
The NIH Plain Language Award program recognizes excellence in clear communications. A ceremony at the National Institutes of Health in Bethesda, MD on May 26 presented the 2009-2010 awards. Understanding Medical Words: A Tutorial from the National Library of Medicine received a Gold Award, the highest honor. This tutorial, added to MedlinePlus.gov in October 2009, is for consumers who want to learn more about what their health care provider is saying. The tutorial is a Flash movie and includes interactive quizzes which teach users how to understand medical terminology using word roots, prefixes, and suffixes. Check it out at http://www.nlm.nih.gov/medlineplus/medicalwords.html
NIH MedlinePlus Salud, a free, consumer-friendly magazine written in both Spanish and English also won a Gold Award. NIH, the Friends of the National Library of Medicine, and the National Alliance for Hispanic Health publish NIH MedlinePlus Salud to provide Hispanic Americans with reliable health information in a user-friendly format. To subscribe or learn more about this magazine, please see http://www.nlm.nih.gov/medlineplus/spanish/magazine/
Submitted by: Lori J. Klein, Reference & Web Services Section, National Library of Medicine
Alkon, Cheryl. Balancing Pregnancy with Pre-Existing Diabetes: Healthy Mom, Healthy Baby. Demos Health 2010. 253p. ISBN 978-1932603323. $18.95.
Cheryl Alkon, writer, researcher, and editor presents a valuable resource for diabetic women who wish to have a baby. Alkon herself has type 1 diabetes and maintains her own blog, Managing the Sweetness Within, where she described her own personal experiences becoming pregnant and staying healthy during the pregnancy while managing diabetes. Alkon draws upon her research and personal knowledge to provide other diabetic women a resource to guide them through their pregnancy.
Alkon’s book focuses on women with type 1 or type 2 diabetes, but not gestational diabetes. The author briefly describes the differences in the types of diabetes and gives an overview of each as background. The author suggests developing a diabetes management plan before becoming pregnant. Alkon emphasizes the importance of the patient lowering her A1c below a certain target before trying to conceive and provides advice on how to accomplish this. She also provides advice on finding the right doctors and collaborating with the diabetes health care team.
The majority of the book provides information for those who have already become pregnant and gives information for expectant moms to follow during the first, second, and third trimesters of pregnancy. Alkon provides information on achieving glucose control during pregnancy and offers advice on foods to eat during pregnancy. Throughout the book, the author intersperses the chapters with stories from patients who have experienced pregnancy while managing diabetes. The author highlights concerns for women without making them fearful that they will not be able to conceive or that their pregnancy will result in a bad outcome. She encourages women to know the facts about diabetes and pregnancy.
Alkon’s writing style makes the book interesting and easy to follow although at times the writing is a bit too conversational. The writing is on a higher than average level, but the author does provide comprehensive information on the topic. There is a wealth of information and tips for women to follow and most women with diabetes wishing to get pregnant or who are already pregnant will find the book beneficial. Charts, tables, glossary of terms, and a listing of further resources enhance the content. The author also provides an Appendix covering information about infertility and pregnancy loss.
Reviewed by: Dana Ladd, Community Health Education Center, Tompkins-McCaw Library for the Health Sciences. Richmond, Virginia.
American College of Obstetricians and Gynecologists, Women's Health Care Physicians Staff. Your Pregnancy and Childbirth: Month to Month. American College of Obstetricians & Gynecologists, 2010. 467p. index. ISBN 978-1-934946-89-3. $14.95.
This latest edition of a classic handbook has a new title that reflects the publisher’s intention to provide a step-by-step guide to the different stages of pregnancy. The book has been reorganized into six sections. Authoritative, evidence-based medical information has always been the hallmark of this book and is most obvious in the month-by-month and labor, deliver, and postpartum sections. The nutrition section is helpfully divided between eating during pregnancy and feeding the newborn. Special considerations such as pregnancy with multiples and planning for pregnancy when obese are treated in a single section. Other sections address medical problems and complications of pregnancy.
The publisher describes the book as easy-to-read, which health literacy experts classify as a 5th-6th grade reading level. I conducted a Fry test that revealed the book to have a reading range from 7th-9th grade. The text is dense with narrow margins and the anatomical drawings are overly detailed for a lay reader. This is not a book for those with reading challenges. The collective wisdom of the ACOG is behind the information, however, and that alone makes the book a highly recommended addition to any consumer health or public library reference collection.
A detailed list of organizations and websites is appended as well as a comprehensive worksheet for the first prenatal visit. The ACOG sponsors a companion website that includes user-friendly interactive charts, links to pregnancy-related resources, a book order form (free shipping) atwww.yourpregnancyandchildbirth.com.
Reviewed by: Abigail Jones, MLIS, MA, Consumer Health Library, John A. Prior Health Sciences Library/Library for Health Information, The Ohio State University, Columbus, OH
Boughton, Barbara and Michael Stefanek, PhD. Twelve Steps to a Healthier Life, Reduce Your Cancer Risk. American Cancer Society/Demos Health, 2010. ISBN 9781932603927 256 pp. $16.95
Written in a conversant style by a medical writer/health journalist and a behavioral researcher from the National Institutes of Health and the Behavioral Research Center with the American Cancer Society in Atlanta, this book is divided into twelve discrete steps that individuals can take to recognize and address cancer risks over the lifespan. Beginning with an overview of cancer risk, the authors encourage readers to move beyond the information that they can acquire on the Internet, and consult their health care provider to review family history of cancer and to understand the appropriate preventive screening tests based on family history as well as chronological age.
Recognizing the increase in specific types of cancer world-wide, advice is offered for skin safety. The triad of anticancer strategies includes physical activity, nutritional concerns and the avoidance of obesity. Information is given on knowing one’s body mass index (BMI) and the importance of healthy eating with portion size management and understanding of behavioral links which are associated with eating. Specific nutritional supplements such as soy, calcium, folate, vitamins C and D, and omega-3 fatty acids are discussed in detail. Nicotine cessation and the prevention of infections are also reviewed.
In addition, a very thorough chapter reviews the environmental toxins that exist that can expose individuals to chemicals and pollutants found in daily exposures. Each chapter has extensive citations of research completed in conjunction with the American Cancer Society, and also included is a seven step guide to changing behaviors. Written for consumers, this book would be a notable addition to a cancer collection and would provide a blueprint for a healthier lifestyle to help prevent cancer.
Reviewed by: Carol Ann Attwood, MLS, AHIP, CHIS, MPH, RN, C, Mayo Clinic Arizona, Scottsdale, AZ
Braddock, Suzanne W., Kercher, Jane M., Edney, John J. & Clark, Melanie Morrissey. Straight Talk about Breast Cancer: From Diagnosis to Recovery, 4th Ed. Addicus Books, 2010. 151 p., 8 p. of plates, index. ISBN: 978-1-886039. $19.95.
Breast cancer survivor Suzanne Braddock was diagnosed with cancer in 1992 and co-wrote the first edition of this book in 1994. Now in its fourth edition, it offers a clear and straight forward overview of breast cancer. Written at about the 9-10th grade level, it is easier to read than most other consumer health books on this subject, however its topics are not covered in as much detail. The authors include three physicians, Braddock, who is a dermatologist, two surgeons, Edney and Kercher, and a writer and editor, Clark.
This book contains eight chapters that provide information about breast cancer, its diagnosis and treatment, including surgery, radiation therapy and systemic therapies, breast reconstruction, and cancer recurrence. A chapter on coping provides suggestions for finding emotional support and addresses the disease’s impact on a woman’s personal relationships. The chapter on breast reconstruction contains eight pages of helpful photographs of women taken after their reconstructive surgeries. The photographs depict various options for breast reconstruction including surgeries using tissue expanders and implants, surgical flaps, bilateral reconstruction, and no reconstruction at all. The book concludes with a list of resources, a large glossary, and an index.
There are a large number of consumer health books about breast cancer, including more comprehensive choices such as The Breast Cancer Survival Manual, Breast Cancer: The Complete Guide, and A Breast Cancer Journey that also provide information about clinical trials and complementary and alternative therapies, which receive minimal attention in this book. Straight Talk about Breast Cancer: From Diagnosis to Recovery is a good choice for someone seeking basic information about breast cancer. It is recommended as an optional purchase for consumer health libraries with larger cancer collections.
Reviewed by: Deborah Magnan, Samuel and Sandra Hekemian Medical Library, Hackensack University Medical Center, Hackensack, NJ
Dr. John Frank Evans, executive director of Wellness & Writing Connections http://www.wellnessandwritingconnections.com, has compiled selected speeches, workshop materials, and essays from the 2007 and 2008 Wellness & Writing Connections Conferences. The result is this text on expressive writing, researched through practitioners in psychology, nursing, and fine arts. Regardless of their discipline, all authors discuss aspects of the healing power of writing.
The book is organized into 3 parts plus a bibliography of selected sources in expressive writing. The first part provides theoretical infrastructure, informed by research from many fields. The second part details different genres of writing (e.g., poetry, narratives) used in healing. The third part describes expressive writing programs used with diverse audiences, from cancer survivors to death row inmates.
Individual chapters can be read as standalone articles. All contributor biographies list solid qualifications to present on expressive writing. This book is assigned the LC subject heading Graphotherapy, which yields just over 50 items in WorldCat. There are few other handbooks on writing to heal, including one authored by a contributor to this volume, Julie Davey. Many items with this subject heading are theses or dissertations, not necessarily available or helpful to the public. The bibliography is not annotated, but is compiled by a librarian.
This book collects research and program descriptions from one series of conferences. It is not a structured workbook of writing exercises patients use to improve their health. Librarians and practitioners supporting art, music or writing therapy could find value in this text. Librarians and faculty engaged in multidisciplinary writing programs may find this book useful for suggestions and guidance.
Reviewed by: Will Olmstadt, Becker Medical Library, Washington University School of Medicine, St. Louis, MO
Gina Maisano was first diagnosed with breast cancer in her mid-30’s and later was diagnosed with a different type of breast cancer requiring double mastectomy. She was a strong, happily single businesswoman and channeled her strengths into founding the non-profit No Surrender Breast Cancer Foundation, a website with a support forum to encourage and coach newly diagnosed women with breast cancer through every step of the disease. She was inspired to write this book after publishing an article on bodily changes and reclaiming the sexual self after cancer, which touched a nerve with many women who were feeling the same things she was.
The book includes information on prescription and natural medications, nutrition and exercise, lymph edema and its triggers, skin and skin care product basics, and breast issues from lumpectomy to reconstruction choices. Part Two of the book is on the dealing with the sexual void most women are left with after treatment. Her writing style is friendly and encouraging, but straight forward: “Girl, get off the Cancerland bus. Slip into something slinky. You are going to love you again….You defeated cancer. You can handle the aftermath….If you are determined, anything is possible.“
I would compare this to titles like Crazy sexy cancer survivor; Why I wore lipstick to my mastectomy; and Cancer Vixen. It is another young and fresh voice, which this topic needed, but I think this book has a lot more meat to chew on .Encouragement and hope for other breast cancer survivors to be able to take back their inner beauty, sexuality and thrive is what she wanted to accomplish with this book, and I think she has done it.
Reviewed by: Theresa Johnson, MLIS, Sutter Resource Library, Sacramento, CA
Mayo Clinic Guide to Living with a Spinal Cord Injury. Demos Health, 2009. 239 p. index. ISBN 10: 1 932603778; ISBN 13: 9781932603774. $17.95.
People who have a spinal cord injury (SCI) experience changes to many, if not most aspects of their lives. A number of consumer health books addressing a wide variety of issues about SCI have been published lately, with Mayo Clinic Guide to Living with a Spinal Cord Injury being the most recent on this topic. It was written by the team of professionals at the Mayo Clinic Spinal Cord Injury Program and is based on the patient education material they provide to their patients. The book opens with an overview of SCI, followed by chapters that provide comprehensive information about changes to the body after a SCI, staying healthy, fertility and sexuality, and actively managing the effects of a SCI on different psychosocial aspects of a person’s life.
While the chapters on body changes in the various organ systems are written at approximately a high school reading level and contain some medical jargon, they offer a great deal of detail not found in other books on this topic. Explanations of changes in body systems such as the skin and gastrointestinal, respiratory, and cardiovascular systems seen in people with SCI are accompanied by descriptions of day to day care, and suggestions to prevent complications. Detailed bowel and bladder management programs and information about nutrition and exercise are also provided. A helpful section in one chapter offers advice on interviewing and hiring a personal care assistant as well as tips for a good relationship with one’s caregivers, whether they are personal care assistants or family members.
This book is recommended for all consumer health libraries, and is highly recommended for those serving rehabilitation settings. It is a nice complement to Spinal Cord Injury A Guide for Living (part of the Johns Hopkins Press Health Book series), which provides more detail on adapting to life with a SCI, but less information on aspects of day to day care and prevention of complications.
Reviewed by: Deborah Magnan, Samuel and Sandra Hekemian Medical Library, Hackensack University Medical Center, Hackensack, NJ
Ogle A. and Manzullo, L. Before Your Pregnancy: a 90 day Guide for Couples on How to Prepare for a Healthy Conception, Rev Ed. New York: Ballantine Books, 2010. 560 p. index. ISBN 9780345518415
In this new edition, the authors, a registered dietician, exercise physiologist, a personal trainer, and a practicing ob-gyn & assistant professor of obstetrics and gynecology offer valuable information to couples considering pregnancy. This is not just about how to conceive, but also clear and realistic advice about how to assume health lifestyle habits in the pre-conceptive period.
This 90-day period before conception is a critical time for couples to assess emotional, financial, environmental, gynecologic, genetic, nutritional, and physical preparedness to give the best chance of a healthy child. According to US Center for Disease Control and Prevention about 1 in every 33 children is born with some sort of birth defect.
Sprinkled throughout the readable text are numerous checklists, tables of important facts and practical advice as well as and patient scenarios. I found the section on Baby friendly – and unfriendly -herbs particularly interesting. Parents-to-be who read this book will approach parenthood with increased knowledge and self-confidence. This book is highly recommended for all public libraries and consumer health collections as well as public health clinics.
Reviewed by: Elyse Pike, Health Sciences Librarian, Grey Bruce Health Services, Owen Sound, Ontario, Canada
While the market is deluged with books written for women with breast cancer, Healing Gifts is one of the few that empower women to take control and participate in their healing process. The authors, a physical therapist and an expert in Tai Ji and Qi Gong, believe that the practice of Qi Gong fills the body with a positive life force, harmonizes the organs and calms the inner spirit. In a conversational style, the art of Qi Gong is explained as well as how it combines posture, breathing, meditation, and gentle movement to release negativity from the body and open it to healing. Photographed, easy to follow breathing exercises and movements are provided, starting with exercises that can be initiated shortly after surgery and progressing to more difficult movements. The personal, non-threatening tone makes this much more than a typical workbook. Emphasis is placed on listening to the needs of the body and working at a self-pace. An illustrated guide to acupressure points is included to help with pain and other cancer-related symptoms. Visual imagery is noted, but healing sounds often associated with Qi Gong are not addressed. Relaxation techniques and meditations round out the book. Included are a glossary of Chinese calligraphy, poetry and a list of resources.
Reviewed by: Nancy O’Brien, Iowa Health – Des Moines, Des Moines, IA.
Simons, Jo Ann. The Down Syndrome Transition Handbook: Charting Your Child’s Course to Adulthood. Woodbine House, 2010. 289 pages, index. ISBN 978-1-890627-87-4. $24.95.
In health care, transition has been defined as “purposeful, planned movement of adolescents and young adults with chronic physical and medical conditions from child-centered to adult-oriented health-care systems." (Blum, 1993) A number of challenges to smooth transition have been reported in the literature and while it is known that health care transition has not been as successful as it could be, little empirical data has been collected to explain why. (Reiss, 2002, 2005)
If the stumbling block is lack of information, Jo Ann Simons’s handbook will be a welcome tool. Although her definition of transition (she quotes Webster’s “a passing from one condition… to another”) is broader than the health care definition and her new publication is geared toward individuals and families affected by Down syndrome, this thorough, extremely accessible and engaging tome will prove to be useful to a broad audience. Simons’s easy-to-read style combines factual information with how-to guidance and personal anecdotes to ease folks through the seemingly formidable process in a reassuring and positive manner.
Simons has extensive experience in the developmental disabilities field and is currently the President/CEO of Cardinal Cushing Centers, Inc. of Massachusetts and Vice-Chair of the National Down Syndrome Society. She has served on the Board of the Special Olympics, and was President of the National Down Syndrome Congress. As the parent of an adult son with Down syndrome who has successfully transitioned to independent living, Simons is well positioned to coach families. This book is highly recommended for consumer health collections.
Blum RW, Garell D, Hodgman CH, et al. (1993) Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health 14, 570 –576.
Reiss J, Gibson R. (2002) Health care transition: destinations unknown. Pediatrics 110, 1307-1314.
Reiss, J, Gibson RW, Walker, LR. (2005) Health Care Transition: Youth, family and provider perspectives. Pediatrics 115, 112-120.
Reviewed by: Mary Grace Flaherty School of Information Studies, Syracuse University, Syracuse, NY
Consumer Connections (ISSN 1535-7821) is the newsletter of the Consumer and Patient Information Section of the Medical Library Association. It is published on the CAPHIS website quarterly. Notification of publication is sent via the CAPHIS listserv. CAPHIS is the largest section of the Medical Library Association.
Newsletter articles and book reviews are copyrighted; please contact the editor for reprint permission.
Please submit items for Consumer Connections during the third quarter for publication in the following quarter.
Submit by this newsletter
|For publication newsletter issue|
Please send submissions in electronic format to the editor:
See Advertising Rate Sheet