ISSN 1535-7821 Vol. 25 No. 3 2009
Do you have a colleague that is willing to give the extra measure every day or to whom others look to as a mentor? Consider a nominee for sustained service to the Medical Library Association and the health sciences by nominating them for the Virginia L. and William K. Beatty MLA Volunteer Award. For further information see:
http://www.mlanet.org/pdf/awards/beatty__app20090713.pdf or contact email@example.com
Submitted by: Ysabel Bertolucci, AHIP
East Bay Library Services, Kaiser Permanente Medical Center, Oakland, CA
“Pillbox” Beta Version Released
The National Library of Medicine (NLM), with support from the U.S. Food and Drug Administration (FDA), has released a beta version of Pillbox, a resource intended to enhance patient safety via an identification and reference system for solid dosage medications. http://pillbox.nlm.nih.gov
Pillbox combines pharmaceutical data from the FDA and NLM with high resolution images, enabling rapid identification of unknown medications. This system is designed for use by emergency physicians, first responders, other health care providers, Poison Control Center staff, and concerned citizens. Pillbox allows users to identify solid dosage medications based on several physical characteristics: imprint (characters or number printed on a medication), shape, color, size, and scoring. Users are shown thumbnail images of possible matches which are continually updated as additional information is entered. Once a medication has been identified, further information is provided, including brand/generic name, ingredients, and DEA schedule. Links to NLM drug information resources are also offered. NLM has made a great effort to verify the authenticity of each image. However, the Pillbox images are not part of the Structured Product Label (FDA-approved drug label) and have not been verified by each manufacturer. For this reason, Pillbox is not currently intended for clinical use.
This fall, NLM and the FDA will initiate a pilot program working with manufacturers to have images submitted for inclusion with the FDA-approved drug label. This will increase the number of images in Pillbox and help to create a resource appropriate for clinical use. Pillbox Beta has two versions: the Adobe Flex version is designed for rapid identification of an unknown medication; the Pillbox screen-reader version has advanced search functionality, including drug name.
Questions about Pillbox should be addressed to David Hale, Biomedical Files Implementation Branch, Division of Specialized Information Services, National Library of Medicine, firstname.lastname@example.org
TOXNET TRI Updated
The National Library of Medicine TOXNET TRI (Toxics Release Inventory) has been updated. http://toxnet.nlm.nih.gov/cgi-bin/sis/htmlgen?TRI
Support for EPA TRI Form A Submissions Added:
The Toxics Release Inventory (TRI), a resource of the U.S. Environmental Protection Agency, is a set of publicly available databases containing information on releases of specific toxic chemicals and their management as waste, as reported annually by U.S. industrial and federal facilities. This inventory was established under the Emergency Planning and Community Right to Know Act of 1986 (EPCRA). TRI's data, beginning with the 1987 reporting year, covers air, water, land, and underground injection releases, as well as transfers to waste sites. In agreement with the Pollution Prevention Act of 1990, source reduction and recycling data is also included in TRI.
The Toxicology and Environmental Health Information Program (TEHIP) in the Division of Specialized Information Services (SIS) of the National Library of Medicine (NLM) provides access to TRI as part of its TOXNET® (TOXicology Data NETwork) databases, which cover toxicology, hazardous chemicals, environmental health and related areas.
WISER – Version 4.3
WISER version 4.3 was released in August and includes a number of new features to help users find the information they require in a more efficient manner. A new and improved user interface is available on WISER for Windows. http://wiser.nlm.nih.gov/
Highlights of this version include :
DISASTR-OUTREACH-LIB: Listserv for Librarians Interested in Disaster Outreach
Join over 300 librarians and information specialists on the DISASTR-OUTREACH-LIB listserv to exchange ideas on providing disaster information to communities. Participants are interested in all-hazards preparedness, mitigation, response and recovery for both man-made and natural disasters such as the H1N1 influenza outbreak. List members may post questions, news, announcements, meetings, training, conferences, job openings, etc. of interest to those involved in disaster information outreach. You can sign up and view the archives at https://list.nih.gov/archives/disastr-outreach-lib.html. For more information, please contact Elizabeth Norton, email@example.com. The listserv is provided by the National Library of Medicine's Disaster Information Management Research Center.
Resource Guide for Public Health Preparedness
This web site, http://www.phpreparedness.info, from the New York Academy of Medicine is a gateway to freely available online resources related to public heath preparedness. Resources include expert guidelines, factsheets, websites, research reports, articles, and other tools aimed at the public health community. Subjects covered include the H1N1 outbreak, bioterrorism, and all aspects of disaster preparedness, response and recovery that impact public health. New resources are announced through an RSS feed and a monthly email update.
ToxMystery Wallpaper Designs Available
ToxMystery is the National Library of Medicine’s interactive learning site, designed for kids ages 7 to 10. It provides a fun, game-like experience, while teaching important lessons about potential environmental health hazards. ToxMystery has proven popular with teachers and kids. To add to the appeal of the site, a series of three wallpaper designs were created for fans of ToxMystery. The cheery designs show Toxie the Cat in his Earth Day T-Shirt and come in three colors. You can download the wallpaper from http://toxmystery.nlm.nih.gov/about.html#wallpaper
Class Opportunity: TOXNET® and Beyond
The TOXNET® and Beyond class covers using the National Library of Medicine's Environmental Health and Toxicology Portal. Classes will be held Tuesday, November 3, 2009, 9:00 AM- 4:00PM. Classes will be held at:
Oregon Health & Science University Library, Biomedical Information Communication Center (BICC) First Floor, BICC Room 120/121 3181 SW Sam Jackson Park Road - LIB Portland, OR 97239
Contact: Dolores Judkins firstname.lastname@example.org (503) 494 3478
This full-day class is designed to convey the basics of searching the NLM's TOXNET, a web-based system of databases in the areas of toxicology, environmental health, and related subjects. Students learn the content and structure of files covering toxicology data, toxicology literature, toxic releases, and chemical searching and nomenclature. Among the databases highlighted are TOXLINE®, the Hazardous Substances Data Bank, the Integrated Risk Information System, the Toxic Release Inventory, and ChemIDplus. This class is for U.S. domestic searchers. There are no fees for training but students must cover their own travel and lodging. Classes are held throughout the United States. The training schedule and other details are available from the National Training Center and Clearinghouse. http://nnlm.gov/ntcc
The TOXNET class is awarded 6 MLA continuing education credits.http://nnlm.gov/ntcc/classes/schedule.html#class5
NLM-Tox-Enviro-Health-L is an email announcement list available from the National Library of Medicine (NLM)'s Division of Specialized Information Services (SIS). The purpose of the announcement list is to broadcast updates on SIS's resources, services, and outreach in toxicology and environmental health. The NLM-Tox-Enviro-Health-L Archives allow users to search list postings, and to modify subscription options. To subscribe to the NLM-Tox-Enviro-Health-L announcement list, please send the following text in the body of an email to email@example.com: SUBSCRIBE NLM-Tox-Enviro-Health-L your name or use the list serv web page: http://sis.nlm.nih.gov/enviro/envirolistserv.html
Submitted by Colette Hochstein, D.M.D., MLS (Colette@nlm.nih.gov), Division of Specialized Information Services, NLM
The information in the fourth edition of Finnie’s Handling the Young Child with Cerebral Palsy at Home has been extensively rewritten and much new information has been added. Throughout the book the emphasis has been changed from infant to child and the way in which problems and interventions change as the child grows. The fourth edition emphasizes this to a greater extent than the third edition did and includes expanded chapters on brain scanning, epilepsy and emotional health. The etiology section reflects latest research on the multiple causes of cerebral palsy and the chapter about movement makes clarifies what typical child movement development is versus movements in cerebral palsy. All the illustrations have been redrawn; the intended information is much clearer in the new illustrations. Additional tables, lists of objectives and summaries have also been added to all the chapters. The index is detailed. Since the authors are almost all from the United Kingdom some of the terminology and the references to the health system may be a little confusing to American parents, but overall the book is very well done and clearly written. The format is a large paperback and definitely worth getting the new edition for consumer health libraries and in public libraries if there is a demand for books about cerebral palsy.
Reviewed by: Kate Smith, MLS Family Health Library, The Children’s Hospital, Aurora, CO
Dr. Tom Buggey, who has been researching and teaching on Video Self-Monitoring (VSM) at Memphis State University for about 15 years, has spent the last 10 years primarily on using VSM with autistic children. Although his research has focused on VSM he recognizes this method has limitations, and points out the significance of continuing to use additional researched and proven methods of teaching positive behavior and academic changes. In Seeing is Believing, he offers an in-depth yet concise guide for professionals and parents on the use of VSM with children various developmental disabilities in which the children themselves star in the video so they may see themselves modeling a positive behavior or action. Buggey begins by highlighting the research that has been done on self-modeling since the 1970s, then presents research that have shown substantial improvements over the years using VSM in such different situations as socialization and classroom participation, reading, math or language skills, and even improving one’s skill at swimming. One of the significant points he makes is the necessity of knowing when children are ready for VSM – their ability to both recognize themselves in a mirror and attend to a video for short periods. Realizing that many are intimidated by the idea of making videos, he details technical instructions on choosing and using the equipment; he then thoroughly explores choosing a target behavior of the child, creating videos through captured and play-acting scenarios, and editing to create positive VSM events that are then shared with the child, and if appropriate, even incorporated it into the child’s individual education plan (IEP). A brief chapter on evaluating the effectiveness of the VSM is followed by several case scenarios of positive VSM situations that cover the entire process from identifying target behaviors to evaluating the results. This is a short book that is easy to read and captivating in its style. While there is some use of more clinical terminology and technical terms, most of the work is written for a parent of an child with a developmental disability who has already done some self-educating about the condition. Any library that includes resources for working with children with developmental disabilities should consider adding this to their collection.
Reviewed by: Amy Six-Means, MLIS; Hanesbrands Health Learning Center at Sara Lee Center for Women’s Health, Forsyth Medical Center, Winston-Salem, NC
In this short, basic guide for Parkinson’s patients and caregivers, the authors – a dermatologist diagnosed with Parkinson’s himself and two neurologists, one trained in neuropsychopharmacology – present a reassuring but realistic approach to dealing with the disease. While not written at an easy reading level, the chapters are brief and laid out with bullet points and explanations of complicated terms such that even those still weathering the shock of a new diagnosis might follow it easily. All aspects of the disease are covered, from an overview of the disease pathology to the emotional aspects of this life changing diagnosis for patient and caregiver, as well as practical advice on lifestyle changes to prevent, decrease or accommodate the debilitating effects of Parkinson’s. An excellent chapter on drug treatment and Parkinson’s including interactions with other drugs or foods is worth the price of the book in itself. Some illustrations to break up the text and demonstrate some key points (e.g., exercises or lifting techniques for caregivers) would have improved the work. However, concluding with a thorough glossary of terminology as well as a helpful list of resources, Understanding Parkinson’s Disease is generally a helpful and compassionate guide that will be particularly useful for the newly diagnosed.
Reviewed by: Kay Hogan Smith, MLS, AHIP, UAB Lister Hill Library of the Health Sciences, Birmingham, AL
Peripheral neuropathy (PN) can be a very painful and debilitating disorder so it is worthwhile having a coping book that is written in a caring and approachable style. It is unfortunate that the cover subtitle (“365 tips for living a full life”) is both typographically incorrect and misleading – the format of the book is not a numbered list of primary suggestions. That minor quibble aside, the book has much to offer patients and caregivers alike. Mims Cushing, a professional writer, has PN; she offers her own experience and perspective on self-care in the first nine chapters. Every aspect of living is covered from coping at home, exercise, travel tips, and wellness, including positive thinking and how caregivers can help. Her co-author is a professor of neurology and neuroscience as well as the director of the Peripheral Neuropathy Clinical and Research Center at the Weill Medical College of Cornell University. The 3 chapters by Dr. Latov focus on communicating with one’s doctor, FAQs (which appear to be taken from actual patient queries), and current research on PN (a nice follow-up to his 2007 book, Peripheral Neuropathy: When the Numbness, Weakness, and Pain Won’t Stop). The final chapter, edited by Cushing, introduces PN patients who share their personal stories. You Can Cope with Peripheral Neuropathy has a helpful index, a glossary of acronyms, an extensive bibliography, and long list of associations whose work is related to PN. Each chapter has a suggested further reading section. This book is highly recommended for all public and consumer health libraries.
Reviewed by: Abigail Jones, Library for Health Information/John A. Prior Health Sciences Library, The Ohio State University Medical Center, Columbus, OH
For couples trying to conceive children, Making Babies presents a program based on the combined expertise of the authors who are noted practitioners in the fertility field. Dr. Sami S. David, a reproductive endocrinologist and microsurgeon, and Jill Blakeway, LAc, a Chinese medicine practitioner, integrative medicine expert, and director of the YinOva Center in New York, present a conception program that blends Western and Eastern medicine. This is offered as an alternative to the sometimes time-consuming and expensive assisted reproductive technologies (ARTs) and IVF (in vitro fertilization) methods. For example, using Chinese medicine, the authors have defined five major fertility types, “Tired,” “Dry,” “Stuck,” “Pale,” and “Waterlogged.” They provide checklists for self-identification and offer couples recommendations to achieve optimum fertility. These recommendations, by type, include a combination of nutrition, exercise, herbal formulas, acupuncture, and blood testing to detect any infections or physical abnormalities that would hinder conception. David and Blakeway explain the detailed and complex subject of fertility in plain language and offer real case studies to illustrate their points. Also included are several pages of resources, including web sites, books, physicians and practitioners, and products. I would recommend Making Babies for public and consumer health libraries.
Reviewed by: Marie Becker, MLS, St. Joseph Hospital Health Sciences Library, Kokomo, IN.
Receiving a diagnosis of cancer can be devastating. Not only do patients have to deal with an illness but they must learn how to navigate a very complex healthcare system – terminology, treatment options, insurance, financial issues, etc. In this book Dr. Mark Fessen, an oncologist and internist at the University of Kansas with fifteen years of clinical practice, gives patients advice on how to navigate what he calls the “cancer system.” Fesen uses his experience to give advice to empower the patient to navigate the cancer system effectively. He begins with chapters explaining why it is important to not panic when given a cancer diagnosis and that it is essential to establish a good relationship with your oncologist and oncology team. He then explains that cancer is not one disease but consists of many different cancers, each with different treatment protocols and prognoses. Fessen covers information on treatment options an oncologist may recommend such as chemotherapy, radiation, and surgery. Fessen also provides beneficial information on insurance issues and the pharmaceutical industry. Interspersed throughout the chapters are anecdotes of true patient stories. He concludes with fifty frequently asked questions and answers and a short list of helpful web and financial resources. While overall a beneficial book for cancer patients, more editing would have been helpful for the flow of some of the chapters. In some places the writing is a bit disjointed, typographical errors are distracting, and while most medical jargon is explained some medical terms are not defined. The text at an intermediate reading level, accessible to most readers. Fessen’s book will be a good addition to most cancer collections. Patients new to cancer and the medical system will find Fessen’s advice helpful when navigating the complexities of medical system and dealing with an illness. Because Fessen only generally covers information on specific types of cancer patients would benefit most by starting with Fessen’s book and then reading a book about their own particular type of cancer.
Reviewed by: Dana Ladd, Community Health Education Center, Tompkins-McCaw Library for the Health Sciences, Richmond, VA
Next Chapter Book Club (NCBC) is an international network of more than 135 book clubs for adolescents and adults with intellectual disabilities. Founded in 2002 by Dr. Tom Fish at the Ohio State University, NCBC promotes literacy by engaging participants in weekly book discussions at bookstores or coffee shops. Meetings are led by 2 trained volunteers. This book is a manual for people interested in creating a local NCBC. The 16 chapters outline starting a club, training volunteers, choosing meeting locations, the role of family in promoting literacy, and marketing your NCBC. The book concludes with a chapter on evaluating an NCBC, including participant and family reactions, and a chapter of frequently asked questions. The CD-ROM includes 11 appendices as PDF files, including recruitment forms, evaluation forms, and suggested reading lists. The authors are established scholars and practitioners in intellectual disability and literacy research, and detail how to work with the spectrum of intellectual disabilities. Searching WorldCat yields titles about book clubs in special education classrooms, but NCBC is purposely held in public venues to improve social connections for intellectually disabled people. This book describes how to engage intellectually disabled populations in a specific kind of book club. It is not about the medical needs of the population. Librarians supporting programs in special education, social work, or rehabilitation counseling will find value in this book. Consumer health services needing resources for the health of intellectually disabled patients might benefit from other titles.
Reviewed by: Will Olmstadt, Becker Medical Library, Washington University School of Medicine, St. Louis, MO
This oversized paperback is written for healthy people who want to improve their digestive health by watching what they eat. The first few chapters provide chatty explanations of probiotics, the good bacteria, and its supporting counterpart, prebiotics. The authors explain what they are, why they are important to digestive health and how to obtain them from common and not-so-common foods. Emphasis is placed on using the kitchen instead of the medicine cabinet to nourish the body and guidelines are provided for kitchen cleanliness, food freshness, labeling and storage. Photographs and food descriptions, recipes, and tips for shopping for new foods at the market or grocery store are included. Key concepts are noted in boxed inserts for easy reference and several case examples are used to illustrate how to make lifestyle changes. The final chapter summarizes the importance of probiotics and prebiotics throughout the life span. While the book is easy to read, it is detailed, well referenced and backed by research. The fine points may be confusing for those looking for a simple overview guide, but is well written and has a place within larger consumer health collections. Haffner is a nutrition consultant with Stanford University Medical School and partner in Hattner/Coulston Nutrition LLC in San Francisco. She is the co-author of HELP! My Underwear is Shrinking (2003), published by the American Diabetes Association. Anderes is a librarian and website developer at Stanford University.
Reviewed by: Nancy O’Brien, Iowa Health – Des Moines, Des Moines, IA
Written in the first person by adult siblings of persons with disabilities, this book identifies the heartfelt and often challenging concerns of siblings as part of their lives as brothers and sisters of those with special needs. The siblings expressed the fears, concerns, and responsibilities that they face throughout their lives. The book is arranged into vignettes of ordinary and extraordinary people who describe their inner feelings as well as their anger and frustration as they reflect upon their special needs siblings. Filled with humor and joy and indescribable moments of self reflection, this resource will fill a gap for the often forgotten siblings of those with disabilities. The book truly fills the void for those who have experienced this situation with honesty and openness. Often overlooked in favor of their siblings with special needs, the adult children reflect on what their lives were like growing up as well as the burden of responsibility that they feel they will have to absorb as the current primary caregivers, their parent, will no longer be able to coordinate the care of their special needs siblings. This book is a vital book for special libraries that seek to have a complete collection for parents, family members, educators, and other caregivers of those with disabilities.
Reviewed by: Carol Ann Attwood, MLS, AHIP, MPH, RN,C, Patient Health and Education Library, Mayo Clinic Arizona, Scottsdale, AZ
Nearly everyone who participates in sports and exercise will experience aches and pains at some point and may even develop an injury related to the activity. This book presents information to help the reader differentiate between minor injuries that can be treated at home and injuries that need medical care. The primary author, Malcolm Read, is a former Olympic athlete and Olympic team physician from Great Britain who holds credentials for several specialties related to sports medicine. The co-author is a sports journalist. The book is “British-centric”, with the authors’ origin apparent in much of the wording and content. The quality is inconsistent, somewhat surprising for a book published by Churchill Livingstone Elsevier. The book is divided into six chapters with colored bars on each page indicating chapter and topic within that section, making it easy for readers to navigate to the topic of interest. The illustrations are clearly labeled and very good while terminology is mixed, with common language used at times and medical terms used in other areas. New terminology is introduced with no explanation (example: “parrot beak tear may settle by itself” is found in the treatment section for a torn meniscus, but there is no definition or reference to this.) The detailed rehabilitation regimes (called training ladders) are comprehensive, but seem to be written for athletes with terminology that a coach would use and might be confusing to an average reader. There is also the basic problem of the book’s recommendation to self-diagnose and self-treat, advice that librarians generally try to avoid. Additionally, the book appears to have been updated haphazardly with this new edition. For instance, the A-Z section about treatments includes an entry for Anti-inflammatory Drugs/NSAIDS and another for NSAIDS/Anti-inflammatory Drugs. The first entry mentions only aspirin, while the second entry mentions ibuprofen, aspirin, and diclofenac (more common in the UK). Another indication that content is outdated is the recommendation to wear cotton clothing during hot weather, rather than modern fabrics that wick away sweat. While this book presents good basic information and illustrations about sports injuries, diagnosis and treatment, there might be better choices for American audiences with more up-to-date and quality information.
Reviewed by: Kelli Ham, Consumer Health Coordinator NN/LM Pacific Southwest Region, UCLA Louise M. Darling Biomedical Library, Los Angeles, CA
Ronay, Laura. Kids Like Me…Learn Colors. Woodbine House, Inc. 2009. Board book, 14 p. ISBN 978-1-60613-001-8. $11.95. Ronay, Laura. Kids Like Me…Learn ABCs. Woodbine House, Inc. 2009. Board book, 26 p. ISBN 978-1-60613-000-1. $12.95.
These simple board books are designed for use with small children and their families and care givers. The bright colors and photographs feature delightful photographs of Down syndrome children with simple objects and shapes which illustrate the concepts of colors and letters. In addition, the book on colors includes color words in Spanish as well as English and the ABCs book includes American Sign Language symbols for each letter. As board books, there is no actual “text”, but rather single words or phrases appropriate to the content of each page. These books would be a good addition to a consumer health or learning resource library in a medical facility. The cost is comparable to other board books of similar length. They would be especially beneficial in a collection which serves pediatric and/or special needs children. The author is a Certified Child Life Specialist, and has worked in the field of child development for more than fifteen years. She enjoys being an advocate for children with Down syndrome. The illustrator, Jon Wayne Kishimoto, is a professional photographer who has worked on both commercial and editorial projects.
Reviewed by: Cheryl Rowan, Public Health Outreach Coordinator, National Network of Libraries of Medicine, South Central Region, Houston Academy of Medicine – Texas Medical Center Library, Houston, TX
Savard, Marie. Ask Dr. Marie: Straight Talk & Reassuring Answers to your Most Private Questions about Sex, Reproductive Health, Fertility, Menopause, Hormones. GPP Life, Guilford, CT, 2009. xiv, 352p. index. ISBN 978-0-7627-4944-7. $24.95.
Marie Savard is an internist who specializes in women’s health. She feels her decision to specialize in internal medicine rather than obstetrics and gynecology has given her a better overall understanding of women's health. Dr. Savard has authored three previous health books, written professional and consumer articles for many different publications, and is an ABC News Medical Contributor. The book is written in a chatty and personal style that endeavors to show support and understanding of the female reader. The chapters, illustrated with black and white diagrams, cover the continuum of women’s health concerns from basic anatomy through menstruation, pregnancy, and menopause. Separate chapters address concerns about urinary and bowel problems, the differences in response to stress between the sexes and the health consequences for women as weight and fat shift during different life stages. Many women feel embarrassed about the questions that they have about female health concerns, and this book offers supportive stories from the author and other women to demonstrate that these questions are shared by many. Ask Dr. Marie gives women the answers to many of these questions in an informative but not overwhelming manner. Though not as comprehensive as the more clinical but classic Our Bodies, Ourselves; this book is less intimidating to the general reader both in size, style, and content. It is recommended for all consumer health libraries.
Reviewed by: Rene L. Brown, M.L.S., Sentara Williamsburg Regional Medical Center, Williamsburg, VA
Shenkman, a lawyer specializing in corporate law and estate planning, has written this practical and comprehensive guide to estate planning specifically geared toward individuals with a chronic disease or disability. In each chapter he reviews the basic concepts of estate planning while emphasizing the special circumstances that people with progressively deteriorating diseases (e.g. Alzheimer’s, Parkinson’s, Huntington’s, etc.) and those with chronic illnesses which have more sudden and unpredictable attacks (e.g. multiple sclerosis, Crohn’s disease, ulcerative colitis, etc.) must consider. Shenkman gives a very detailed and meticulous dialogue on the issue of competency in Chapter 4, where he gives an overview of how cognitive impairment issues and certain chronic disorders (e.g. dementia, Alzheimer’s disease, etc.) affect the estate planning process. In each chapter Shenkman explains in clear and concise terms the basic concepts of estate planning, including wills, living wills, power of attorney, HIPPA laws, and health care proxy among others. He also includes examples of various estate planning problems that people with chronic illnesses or disability may encounter and gives solutions to each issue and summarizes each chapter stressing the important issues covered. In one chapter, he gives step-by-step detail in how to prepare for one’s first visit with a an estate planner. Shenkman explains complicated legal terminology in layman’s terms. This book is very well written and would be a highly useful resource in public and consumer health libraries. .
Reviewed by: Latrina Keith, New York Academy of Medicine Library, New York, NY.
This translation of the 2008 edition of Babies with Down Syndrome: A Guide for New Parents provides current, comprehensive, and compassionate information for parents who are learning to care for infants and children with this genetic disorder. The book offers the latest scientific and medical information, educational research, and practical information from experts in the field and from other parents who are raising children with Down Syndrome. Each chapter is written by a health or educational professional. After the author covers his/her subject- information about the causes, characteristics, and diagnosis of Down Syndrome, adjusting to the baby, medical concerns, daily care, family life, development and learning, early intervention, and legal and financial issues- a series of quotations from parents provide first-hand experiences and support for new parents facing the challenges and rewards of raising a child with this condition. This is an extremely useful resource that parents will want to keep on hand at home. A copy in the library will be very helpful as well. Libraries serving Spanish speakers will want copies on both English and Spanish for staff and patrons. .
Reviewed by: Barbara M. Bibel, Oakland Public Library, Oakland, CA.
Consumer Connections (ISSN 1535-7821) is the newsletter of the Consumer and Patient Information Section of the Medical Library Association. It is published on the CAPHIS website quarterly. Notification of publication is sent via the CAPHIS listserv. CAPHIS is the largest section of the Medical Library Association.
Newsletter articles and book reviews are copyrighted; please contact the editor for reprint permission.
Please submit items for Consumer Connections during the third quarter for publication in the following quarter.
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