Articles from the Literature
Pacific Southwest Regional Medical Library
Louise M. Darling Biomedical Library/UCLA
- Gobel G, Andreatta S,
Masser J, Pfeiffer KP. A MeSH based intelligent search intermediary
for Consumer Health Information Systems. Int J Med Inf. Dec 2001;64(2-3):241-251.
- Eysenbach G. Evidence-based
Patient Choice and Consumer Health Informatics in the Internet Age.
J Med Internet Res. Apr-Jun 2001;3(2):E19.
- Terry NP. Rating the raters
: legal exposure of trustmark authorities in the context of consumer
health informatics. J Med Internet Res. Jul-Sep 2000;2(3):E18.
- Babish JA. CHI services:
consumer health library consortia--a growing trend. Natl Netw. Oct
- Longo DR, Patrick TB.
Consumer reports and health care information: a call for research.
J Health Care Finance. Fall 2001;28(1):92-96.
- Gustafson DH, Hawkins
RP, Boberg EW, et al. Chess: ten years of research and development
in consumer health informatics for broad populations, including the
underserved. Medinfo. 2001;10(Pt 2):1459-1563.
- Lippman H. Carving new
roles for the health care consumer. Bus Health. 2000;18(6 Suppl A):30-34.
- Wagner TH, Hibbard JH,
Greenlick MR, Kunkel L. Does providing consumer health information
affect self-reported medical utilization? Evidence from the Healthwise
Communities Project. Med Care. Aug 2001;39(8):836-847.
- Pittman TJ, O'Connor MD,
Millar S, Erickson JI. Patient education: designing a state-of-the-art
consumer health information library. J Nurs Adm. Jun 2001;31(6):316-323.
- Navarro FH, Wilkins ST.
A new perspective on consumer health Web use: "valuegraphic" profiles
of health information seekers. Manag Care Q. Spring 2001;9(2):35-43.
- Eysenbach G, Diepgen TL.
The role of e-health and consumer health informatics for evidence-based
patient choice in the 21st century. Clin Dermatol. Jan-Feb 2001;19(1):11-17.
- Studies produce mixed
portrait of online health consumer. Internet Healthc Strateg. Mar
Reeves Medical Library, Cottage Hospital
Santa Barbara, CA
The theme for MLA 2002 is "Big D" so all the programs have the letter
"D". The CAPHIS supported programming is as follows: The first program
is Diversity. Demographics and Disparities in Accessing and Delivering
Health Information and Health Care. Part I is on Sunday 5/19/02, from
4-5:30 PM. It will address access to complementary and alternative therapies
and information by all groups, regardless of ethnic & financial considerations.
Part II, on Monday, 5/20/01, from 10:30 AM-12:00 noon, will address
the ability to access quality health care as a "health parity" issue.
Chiropractic is the lead sponsor for this program. CAPHIS is partnering
with Relevant Issues, Public Health, Complimentary Medicine, Mental
Health, Osteopathic, and the African American and Outreach SIGS.The
second program, Dollars and Sense, is also a two-part program. Part
I is on Sunday 5/19/02, from 4-5:30 PM. Invited speaker Tom Sanville
from OHIOLink will discuss consortial purchases, especially by multitype
libraries; as well as all the issues involved in such an undertaking.
The lead sponsor for this program is Collection Development; CAPHIS
is the secondary sponsor. Dollars and Sense, Part II is Creative Collaboration
for Funding & Service. It will be on Monday 5/20/02, from 10:30 AM-12:00
noon, and will explore the role of multi-type library networks and other
consortia in providing and expanding access to health information. CAPHIS
is lead sponsor on this; other sponsors include Collection Development,
Hospital Libraries, Technical Services, and Federal Libraries. The third
program, Dealing With the Tough Questions will be held on Wednesday
5/22/02, from 9-10:30 AM. Invited Speaker Gail Rink, MSW, is a national
award winning Hospice educator and counselor. CAPHIS is the lead sponsor
on this. Secondary sponsors are Cancer Librarians, Nursing & Allied
health Resources, Veterinary Medicine, Federal Libraries, and Mental
Penny. The Birth Partner: Everything you need to know to
help a woman through childbirth. 2nd. Ed. Harvard Common
Press, 2001. 337 p. index. ISBN 1-55832-195-0 paperback. $12.95.
This is the second edition of a book written for the person helping
a woman through childbirth. The author, Penny Simkin, has over 30 years
of experience in teaching and supporting women through childbirth and
has authored or co-authored several books on this topic.Though the reader
is encouraged to read the entire book before the baby's birth, the author
recognizes that the book will probably be used as a reference during
labor and that the birth partner may need to find answers quickly. Some
of the page edges are darkened so that they can be quickly located -
information about timing contractions, "positions and movements for
labor and birth", "first aid for emergencies in childbirth" and "When
can pain medication be used?" are some of the quick reference sections.The
text is clear and easy to understand. It is almost as if the author
were sitting with the reader having a conversation. Ms. Sirkin recognizes
that medical jargon is often difficult to understand so she uses medical
terms along with clearly understandable descriptions. The text is liberally
sprinkled with line drawings that help illustrate the topic being discussed.
The line drawings are good but I think adding some color photographs
would have been an advantage for the reader.This is an excellent resource
for a consumer health library.
Bronson Methodist Hospital
William M. and Susan W. Buchholz. Live Longer, Live Larger:
a holistic approach for cancer patients and families.
O'Reilly, 2001. 389 p. index. ISBN 1-56592-845-8. $24.95Live Longer,
Live Larger is based on almost twenty-five years of experience with
thousands of patients and families dealing with cancer. The authors
are a husband and wife team. He is a medical oncologist; she, a clinical
psychologist.Drs. Buchholz define the largeness of a person's life as
a product of how long they live times how well they live (quality of
life) times how meaningfully they live (spiritual, creative, contributive
aspects). The emphasis of the book is guiding the reader to examine
the latter two aspects.The book has six divisions: initial diagnosis,
deciding on treatment, going through treatment, experience of remission,
relapsing, and facing the endgame. Topics include conquering fear, finding
the right treatment for yourself, using hope as medicine, surmounting
barriers to treatment, increasing quality and meaning of life, redefining
your relationship with cancer, and finding opportunity amidst the crisis.
Sections include reflective questions to ask : What am I willing to
risk in order to be cured? What kind of support do I need? Do my plans
for the future prevent me from living in the present?The authors share
many stories of patients to illustrate each point. These are told in
both narrative form and as direct quotes from the patients themselves.The
book serves as a guide to help the patient put his/her life in perspective.
While subtitled as an approach for cancer patients, some of the patients
described in the book do not suffer from cancer at all, but from other
life-threatening or life-shortening diseases. Live Longer, Liver Larger
would be helpful for anyone who is facing serious illness, not just
cancer, whether it is life-threatening or not.
Willian J. et al. Parkinson's Disease: a complete guide
for patients & families. Johns Hopkins University Press,
2001. 256p . index. ISBN 0-8018-6556-5. $15.95
This book thoroughly covers early symptoms and diagnosis, disease stages,
late complications, treatment side effects and distinguishing complications
and side effects from unrelated symptoms. Illustrations are few but
support the text well. A good feature is a concluding question-and-answer
chapter with short clear answers to frequently asked questions with
the chapters noted where the topics are covered. Other books by other
authors written for people with Parkinson's and their families do discuss
personal coping, life management, and exercise in more depth, but none
cover the known scientific facts more thoroughly. Topics barely mentioned
in others, such as the occurrence of hallucinations, are fully addressed.
Though there is a good chapter on surgical interventions, details on
specific devices still need to come from their manufacturers. The authors,
especially the first author, are well known neurologists specializing
in movement disorders, with many peer-reviewed articles in publication.
The reading grade level is high, grade 12 in all the randomly chosen
paragraphs that were scanned, and the readability scores tend to be
low. This may be unavoidable in a serious attempt to explain pathophysiology
of the nervous system. Our impression is that many Parkinson's people
are committed enough to learning about the disease to deal with the
difficult reading, but some may give up, or read only selected chapters.
The primary audience may be the younger, better-educated patient or
family member. Whenever technical words are used, they are explained
in ordinary language at their first appearance. Chapters may be read
separately, and there are good cross references to other chapters where
topics touched on are discussed in more depth or initially introduced.
Wegner Health Sciences Information Center
Sioux Falls, South Dakota
with help from Phyllis Newstrom
Parkinson's Support Group Facilitator
Sioux Valley Hospital USD Medical Center
Bert & Picker, Lester A. The Macular Degeneration Source
Book. Addicus Books, 2002. 153 p. index. ISBN 1-886039-53-4.
The Wills Eye Hospital Library regularly receives requests from the
public for information on macular degeneration. This book should be
useful in dealing with some of those questions.The authors, a retina
specialist and a health writer, begin with a clear summary of the disease
and its different manifestations. They emphasize risk factors and how
to reduce them. In addition, they are honest about the limited treatment
options and the fact that they primarily retard the development of the
disease but do not significantly improve the patient's vision. The strength
of the book, however, is in its chapters about how to adapt to visual
impairment. They address ways in which the patient's home can be made
"eye-friendly" and suggest accommodations for the workplace. A list
of resources at the end includes names, addresses, phone numbers, and
URLs for the major organizations concerned with visual impairment; and
information on the vision aids and software that are available to assist
the visually impaired in continuing to lead a normal life. Unfortunately,
there are two major flaws to this book. First, the type size is too
small for someone with a visual impairment to read without a magnifying
device. A larger font could have been used without adding to the size
of the book since the margins are fairly wide. The second area of concern
is the lack of references. The chapters on the disease process, treatment
options, and reduction of risk factors all include mention of various
research studies yet there is no documentation of these studies. Many
of our patients want to read reports from the various clinical trials.
A book of this sort should provide for additional reading.
Wills Eye Hospital
The two other recent titles on laser vision correction that I consulted
were The Laser Vision Breakthrough and The Complete Book of Laser Eye
Surgery. If you already own one of these two titles, then you probably
don't need LASIK: A Guide to Laser Vision Correction, unless you have
a need for something written at a lower literacy level. Both of the older
titles go into more depth and detail than LASIK does. The authors of all
three books have good credentials, and cover the same basics. LASIK: A
Guide to Laser Vision Correction has the lowest reading level.
Ernest W.; Maloney, Robert K.; Davidorf, Jonathan M. LASIK:
A Guide to Laser Vision Correction. Addicus Books, 2001.
115 pages. ISBN 1-886039-54-2. $14.95.
This slender volume provides a clear, concise overview of the laser
vision correction surgery known as LASIK. After a brief, illustrated
explanation of how the eye works and how the surgery is performed, the
benefits, risks, and contraindications are laid out in a very readable
fashion. The excellent illustrations include photographs, black and
white line drawings, and color drawings of the eye, the procedure, and
the instruments used. Compared to other titles on the topics, it has
the nicest illustrations and the clearest explanation on how to read
and understand your eyeglass prescription. It is also the shortest and
written at the lowest reading level. The authors are all opthalmologists
who have performed the surgery many times, and one of them (Maloney)
has had the procedure done himself.
Redwood Health Library
Norman E. Winter Blues: Seasonal Affective Disorder: What
It Is and How to Overcome It. Guilford Press, 1998. 354
p. index. ISBN 1-57230-395-6. $15.95.
In the early 1980s, Dr. Rosenthal and his colleagues at the National
Institute of Mental Health first described seasonal affective disorder
(SAD) as a syndrome and pioneered the use of light therapy to treat
it. Dr. Rosenthal himself suffers (or perhaps more correctly, suffered)
from SAD. In this revised edition of his book originally published in
1993, he discusses SAD and the milder form of depression, winter blues.
He estimates that six percent of the U.S. population suffer from SAD
and another fourteen percent from winter blues. Dr. Rosenthal reviews
the causes and symptoms of SAD, describes other illnesses that may resemble
SAD, and urges readers to get a physical exam to rule out these other
illnesses. A questionnaire is included to help you determine if you
suffer from SAD and when to seek medical advice. The chapter on light
therapy is excellent, using a question and answer format. It includes
possible side effects and even a sample letter to send to a health insurance
carrier to request coverage for the purchase of a light box. There is
a chapter on ways to help yourself cope with SAD and winter blues, including
stress management, exercise, and diet. The author favors the Carbohydrate
Addict's Diet" and the Paleolithic diet, which some may see as a drawback
to the book. The chapter on psychotherapy describes the types available,
when to seek therapy, and how to choose a psychotherapist. Other chapters
cover SAD in children, antidepressant medications, herbs, and vitamins,
a step-by-step guide for mapping your symptoms and planning activities
and therapies for each month, information for families and friends of
SAD sufferers, and research on SAD and its treatment.Beyond an in-depth
discussion of SAD and its treatment, the author also touches on related
topics that make for interesting reading, such as "summer SAD," hibernation,
seasonal effects on reproduction and sex, seasonal effects on animals,
other possible uses for light therapy such as treating PMS or jet lag,
SAD in northern countries, historical examples of SAD, the seasons and
creativity, and the joys of winter. The final section of the book offers
resources for purchasing light boxes, help in finding a therapist or
support group, dietary advice, a bibliography for further reading, and
a SAD self-assessment. While the reading level is somewhat high (Flesch-Kincaid
grade level 11.0), overall this is an excellent book, not only informative
but a pleasure to read.
Providence Yakima Medical Center
Jeffrey C. My House Is Killing Me! The Home Guide for Families
with Allergies and Asthma. Johns Hopkins University Press,
2001. 348 p. ISBN 0-8018-6730-4. $16.95.
Jeffrey May, an Indoor Air Quality investigator, begins by describing
the visible and microscopic ecology of our homes that can affect the
quality of the air we breathe, then goes on to examine each area of
a typical house and the conditions that may encourage an unhealthy environment.
While we learn more than we probably wanted to know about the contents
of microscopic fecal pellets, we also learn how to control the molds,
bacteria, yeast, dust mites and other allergens in our living spaces.
May also addresses off-gassing problems.In each chapter, May uses examples
from his own experiences inspecting homes and investigating sources
of health problems for allergic and asthmatic clients to illustrate
the effects of excessive humidity, house pets, leaky plumbing, poor
insulation, furniture and carpets stored in unfavorable conditions,
inefficient or contaminated chimneys and air ducts, and the use of certain
plastics and adhesives. Some of the discoveries of this chemistry teacher
and allergy sufferer turned Indoor Air Quality professional in the homes
he has inspected are alarming from a health and safety perspective,
while others are merely amusing. (My personal favorite is the story
of the steaming toilet in the illegal basement apartment.) He closes
each chapter with specific recommendations to keep the indoor environment
more hospitable to us than to dust mites and other allergens. This book
includes a glossary and a resource guide, but no index.Potentially more
useful to people looking for detailed recommendations to control allergens
in their home is Jayne M. Ruppenkamp's 101 Ways to Reduce Allergens
in Your Home (Positive Publishing, 1999. 140 p. ISBN 0-9670163-0-4.
$15.95 - available from Allergy & Asthma Network Mothers of Asthmatics,
www.aanma.org, phone 800-878-4403). For information about the air quality
of schools, consider works such as The Healthy School Handbook: Conquering
the Sick Building Syndrome and Other Environmental Hazards In and Around
Your School, edited by Norma L. Miller (NEA Professional Library, 1995.446
p. index. ISBN 0-8106-1863-X. $21.95).
R. Pfannenstiel, MALS, MA.
Kreamer Family Resource Center
Children's Mercy Hospitals & Clinics
Kansas City, MO
MEDLINEplus Received URAC AccreditationMEDLINEplus.gov is the first government
Web site to receive the URAC Health Web Site Accreditation designation
from URAC, a Washington group also known as the American Accreditation
New Drug Information on
MEDLINEplusOn May 8 the drug information available from MEDLINEplus was
expanded to include the American Society of Health-Systems Pharmacists
(ASHP) MedMaster(TM) database. MedMaster includes over 700 drug monographs.
New alphabetical index pages indicate the source of the information, MedMaster
or the United States Pharmacopeia's Drug Information Advice for the Patient,
which has been available on MEDLINEplus since May 2000.
MEDLINEplus Use GrowingIn
April MEDLINEplus was visited by over 1.3 million unique users, who
accessed over 11 million pages.
(ISSN 1535-7821) is the newsletter of the Consumer
and Patient Information Section of the Medical LibraryAssociation and
is published quarterly.
Content for each issue is
cumulated online at http://caphis.mlanet.org/newsletter,
primarily during the first two months of the quarter; the issue is considered
complete at the end of the quarter. Notification of publication is sent
quarterly via the CAPHIS listserv. Newsletter articles and book reviews
are copyrighted; please contact the editor for reprint permission.
Please submit items for Consumer
Connections during the third quarter for publication in the following
in this issue:
Please send submissions in
electronic format to the editors:
E -mail: firstname.lastname@example.org
Telephone: (650) 725-3308
E -mail: email@example.com
Telephone: (650) 725-8100
Fax: (650) 725-1444